Campaigning hard

We're lobbying decision makers hard in the interests of our community, from inequalities in care, greater support to help us search for a cure and the organ transplants that many need to live longer.

Get involved with our campaigns and help us shout louder for the cystic fibrosis community!

Jason McCartney, MP

We are working continually to:

  • Increase the length and quality of life for people with cystic fibrosis
  • Drive up standards of care
  • Increase capacity of cystic fibrosis research and clinical care
  • Expand awareness of cystic fibrosis and its impact on individuals and families

One in three is one too many - one in three people with cystic fibrosis on the lung transplant waiting list will die waiting for their new lungs. That is one too many. Join our campaign for a fair and equitable national system of lung allocation.

Current campaigns:

Campaign coalitions we belong to: