Cystic Fibrosis Trust Homepage

Physically Well 

Together, we can live without the physical challenges of cystic fibrosis. 

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Mentally Well 

Together, we can manage the mental pressures of cystic fibrosis. 

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Fulfilment

Together, we can lead the life we want as part of a connected community.

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Information & support

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Walk, Jog, Run for CF

Join us at Harewood House in Leeds this July and help make sure everybody with cystic fibrosis can live a life unlimited.

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Latest news and blogs

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Updated UK standards for the nursing management of cystic fibrosis published

Cystic fibrosis specialist nurse and Chair of the Cystic Fibrosis Nursing Association (CFNA) Working Group Caroline Whitton highlights the work of cystic fibrosis clinical nurse specialists (CF CNSs) and the importance of the updated guidelines.

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Access to once-a-day triple therapy moves a step closer

The UK medicines regulator, the MHRA, has today approved the once-a-day triple therapy, Alyftrek (vanza triple).

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“We’ve built real momentum, and this is the moment to put our foot down and accelerate”

This week, we held a briefing for journalists in partnership with the Science Media Centre to mark the achievements that have been made in the last 60 years, whilst also looking to the future of CF and the Trust’s goal of everyone being able to live without limits imposed by CF.

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Current issues

Find out about Creon shortages, I-neb nebulisers, and the cost of living crisis, what we're doing to help resolve these issues, and how we can support you.

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Bungee Jump

Experience the thrill of a lifetime with our exhilarating bungee jumps.

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Overseas Challenges

Own Place

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Tough Mudder

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CF never lets you have a day off

Cystic fibrosis is a life-limiting, genetic condition without a cure. It dominates thousands of lives every day. You never get a day off when you have CF. 

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Helpline

Contact our friendly Helpline team who can provide you with information about any aspect of living with cystic fibrosis.

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