Cystic Fibrosis Trust Homepage

Physically Well 

Together, we can live without the physical challenges of cystic fibrosis. 

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Mentally Well 

Together, we can manage the mental pressures of cystic fibrosis. 

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Fulfilment

Together, we can lead the life we want as part of a connected community.

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Current issues

Find out about Creon shortages, I-neb nebulisers, and the cost of living crisis, what we're doing to help resolve these issues, and how we can support you.

Latest news and blogs

Blog -

“I told myself I had to be the strong one, but emotionally, I was struggling": Men's Mental Health Month

Ian, whose daughter Penelope has CF, talks about managing his mental health and wellbeing following his daughter’s diagnosis.

News -

New reports reveal realities of cystic fibrosis

To mark 60 years of Cystic Fibrosis Trust, the charity today publishes its latest Registry report, revealing an increase in predicted survival for those with cystic fibrosis (CF) born today, but still lagging decades behind general life expectancy. And latest research shows many are not receiving the support they need to manage the lifelong, life-limiting condition.

Blog -

"I hope Xander has a life full of opportunity and adventure": Dad Duane shares Xander's story

With your support this festive season, we can continue to fund research breakthroughs that change what it means to live with CF in the future. Together, we can make sure children with CF like Xander, who can’t benefit from current modulators like Kaftrio, can live a life unlimited. We chatted to Xander’s dad Duane about his “fun loving” little boy, his hopes for the future, and what his festive wish would be for Xander and the CF community.

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Permanent access agreements for modulators

Kaftrio, Orkambi and Symkevi have been permanently approved on the NHS in England, Wales, Scotland and Northern Ireland.

Events

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Event Date:

Carols by Candlelight

Join us for Carols by Candlelight 2024

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CF never lets you have a day off

Cystic fibrosis is a life-limiting, genetic condition without a cure. It dominates thousands of lives every day. You never get a day off when you have CF. 

More from Cystic Fibrosis Trust

Helpline

Contact our friendly Helpline team who can provide you with information about any aspect of living with cystic fibrosis.

Contact us

Get in touch with us if you have any questions or are in need of guidance.

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