Cystic Fibrosis Trust Homepage

Physically Well 

Together, we can live without the physical challenges of cystic fibrosis. 

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Mentally Well 

Together, we can manage the mental pressures of cystic fibrosis. 

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Together, we can lead the life we want as part of a connected community.

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People with CF sharing their story for 60th anniversary

Cystic Fibrosis Trust: Since 1964

For 60 years, we’ve overcome challenges and celebrated breakthroughs. Always learning and moving forward. And we won't stop until CF does. 

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NICE modulator appraisal

NICE is currently running a formal appraisal process on the cost-effectiveness of Kaftrio, Orkambi and Symkevi. Find out more here

Latest news and blogs

News -

Emily’s Entourage reveals the results of their Final 10% Survey

Emily’s Entourage - a US-based non-profit organisation focused on research and drug development for rare cystic fibrosis mutations - latest survey findings show that those not benefitting from modulators continue to live with a substantial treatment burden, and this is impacting their quality of life.

Blog -

“You are worth something, you offer something, and you contribute every day”: James’s story

We sat down with James, who has cystic fibrosis, to talk about the impact CF has had on his life, his biggest challenges – and his hopes for the future

Blog -

Jane's blog: Running three marathons for Cystic Fibrosis Trust!

We spoke to Jane, an anesthetist and member of our Sixty Five Roses Club , about her son William who has CF and her upcoming plans to run three marathons this year, two of which will be in the same week!

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Use your gaming skills for good! Join us, be part of our community, build new connections, have fun and #Game4CysticFibrosis.

More from Cystic Fibrosis Trust


Contact our friendly Helpline team who can provide you with information about any aspect of living with cystic fibrosis.

Contact us

Get in touch with us if you have any questions or are in need of guidance.

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