Experiences of Living with Cystic Fibrosis; The impact on children, young people, adults and their families
Details
- Therapeutic category
- Behavioral
- Trial status
- Completed Participating Centres
Full title
A study to understand needs, challenges and aspirations of people with cystic fibrosis and their siblings in the UK
Through interviewing both the patient with CF and their families, this study hopes to establish a clearer picture of the effect the condition can have on the individual themselves and on their immediate family, in various aspects of their lives. From this, we hope to understand the key challenges facing these populations to help tailor the development of services.
A study to understand needs, challenges and aspirations of people with cystic fibrosis and their siblings in the UK
Through interviewing both the patient with CF and their families, this study hopes to establish a clearer picture of the effect the condition can have on the individual themselves and on their immediate family, in various aspects of their lives. From this, we hope to understand the key challenges facing these populations to help tailor the development of services.- Trial Reference Number
- 95222
- Trial type
- Non-medication
- Length of participation
- 1 day
- Intervention
- None
- Recruitment target
- 100
- Last edited date
- 22/02/2019
- CF sponsor
- UCL Great Ormond Street Institute of Child Health
- CF sponsor type
- Academic
Who can take part?
- Top inclusion criteria
- 11yrs + with CF
- 11-25yrs Sibling of someone with CF
- Parent/Carer of someone with CF
- Top exclusion criteria
- Insufficient English to complete Quality of Life interview