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Cystic Fibrosis Trust

Day 2

A day designed for clinical healthcare professionals as well as those with a personal or professional interest in cystic fibrosis. The morning gave a comprehensive update on the ambitious plans of the Trust and where these sit within the evolving NHS. The core afternoon agenda looked at the issue of 'adolescence' and explores how a joined-up, multidisciplinary approach to this key life stage is crucial to effective care and treatment.

Check out the live streams of the day here for the chance to hear what happened on Day 2 of the conference. Below, you'll find the agenda to help you navigate through the live streams, and some links to additional video interviews with speakers.

Morning session live stream


Afternoon session live stream


Agenda

Welcome and introduction to 'Fighting for a Life Unlimited'. Ed Owen, Chief Executive, Cystic Fibrosis Trust.

Keynote: Cystic fibrosis in the new NHS
Kim Cox, Senior QIPP Clinical Programme Manager – Specialised Commissioning, NHS England 
Professor Diana Bilton, Director of the Adult Cystic Fibrosis Service, Royal Brompton Hospital 

Integrating clinical care, registry, research and information to effectively benefit those with cystic fibrosis
Dr Keith Brownlee, Director of Impact, Cystic Fibrosis Trust 

Update on the UK CF Registry
Rebecca Cosgriff, Registry Lead, Cystic Fibrosis Trust

Update on the Cystic Fibrosis Trust's research plans
Dr Janet Allen, Director of Research, Cystic Fibrosis Trust

Lungs for Life: Non-medical ways to improve lung function. Chaired by Dr Janet Allen, Director of Research, Cystic Fibrosis Trust

Moving mountains
Jonathan King, Hospital Doctor, 'Beat your Demons' - watch a short video interview with Dr King

Lunch and opportunity to meet the sponsors

Workshops
a. Physical: exercise testing and physical activity
Helen Douglas, Senior Respiratory Specialist
Physiotherapist, Great Ormond Street Hospital

b. Nutrition: non-pancreatic aspects of the CF gut - a series of case discussions
Sue Wolfe, Consultant Paediatric CF Dietitian, Leeds
Laurie Cave, Specialist CF Dietitian, Leeds

c. Psychological: motivational interviewing in CF patients 
Dr Rachel Attfield, Clinical Psychologist, Sheffield Adult CF Service

d. Physiotherapy: Breathing Pattern Dysfunctions; recognising, diagnosis and treatment in CF 
Charlotte Wells, Specialist CF Physio - watch a short video interview with Charlotte

e. Pharmacy: drug therapy for the non-pharmacist
Patrick Wilson, Lead Pharmacist: High Cost Medicines Management, Nottingham University Hospitals

f. Centre directors meeting (closed)
Ed Owen, Chief Executive, Cystic Fibrosis Trust
Dr Keith Brownlee, Director of Impact, Cystic Fibrosis Trust

Adolescence: Non-medical ways to improve lung function. Chaired by Ed Owen, Cystic Fibrosis Trust

Film: CF Trust adolescence film

A CF adolescent and parent perspective

Adolescent motivation - neurological and emotional
Dr Mandy Bryon, Consultant Clinical Psychologist, Great Ormond Street Hospital

Closing comments

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

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