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Cystic Fibrosis Trust

Kate's story

My name is Kate and I’d like to ask you to buy and sell tickets for the Cystic Fibrosis Trust’s Christmas Raffle.

The prizes are fantastic and taking part is so easy, but most importantly the money raised will be put towards improving the lives of people with cystic fibrosis (CF) like my son, Reuben.

My husband Toby and I have two sons, Dylan, age six, and Reuben, age two. Finding out Reu was likely to have CF after my 12-week scan was a very difficult time. We were in shock, and anxious about what to expect, but we knew that we were fully committed to our beautiful baby boy and we would be there for him through the tough times.

Now two years old, Reuben has about 20 medicines a day, as well as inhalers, nebulized medicines and physiotherapy. He’s had a tough two years and spent lots of time in hospital, including two scary weeks in intensive care, but Reuben is strong and tenacious. There are no silver linings to having a child with a life-limiting condition, but watching the way Reu copes makes me so proud of him.

Throughout everything we have had lots of support from the Cystic Fibrosis Trust. At the first hospital meeting we were advised to use the Trust’s online resources, and it was reassuring to know that there was trustworthy information for families like us. We also received support and information about employment and benefits through the helpline.

To think that there might one day be a cure for CF means the world to me. It is why I fundraise for the Trust, so that they can continue to fund research into life-changing treatments and get closer to the day when Reu and everyone affected by the condition can focus on what really matters – living life to the full.

Please join me in buying and selling tickets this Christmas so that we can get even closer to reaching that day.

Thank you for all that you do to support the Trust and keep up the good work!

Play the Christmas Raffle

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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More information

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