The Cystic Fibrosis Trust simply couldn’t do what it does without you. In our fight for a life unlimited by cystic fibrosis we are extremely lucky and grateful to have the support of our amazing volunteers who give up their time and money to support our cause. Many of these wonderful people have kindly developed some exciting supporter initiatives to help raise additional funds in aid of the Trust. Take a look at the array of items below and see if anything takes your fancy!
If you have a fundraising initiative that you would like us to promote, your Community Fundraiser would love to hear from you.
Thank you so much for all your support!
Breathe With Me
Breathe With Me is a new release by emerging Indie pop artist Betsa, that aims to focus public attention on cystic fibrosis (CF) and the campaign for access to new precision medicines on the NHS.
Well-known music producer Simon Ellis (who has worked with artists like S Club 7, Britney Spears, The Spice Girls) produced Breathe With Me. He had also previously worked with Betsa and when he approached her to perform on the track she was delighted to volunteer her services for such a good cause.
The resultant song is an upbeat number, with a video that features people who are living with cystic fibrosis including Veronica Lanzetta, who had a double lung transplant in 2015.
“The song is about understanding and relating to what others might be going through. In this video I had diseased lungs painted on my back” said Veronica. “The front of me was painted with beautiful roses, to signify new life and hope after my transplant, and also because ’65 roses’ is a symbol that is used often in the CF world. Young children find it difficult to pronounce cystic fibrosis – one little boy called it 65 roses and the phrase stuck.”
“We hope that the cystic fibrosis community will find many innovative ways to let people view the YouTube video for ‘Breathe With Me’ – They can share it on social media, play it at events and if anyone has contacts with local radio – perhaps they can also ask for it to be played on their local station.”
Elizabeth Sheahan (15) also took part in the video because she is putting her all into advocating for access to cystic fibrosis precision medicine. Her scenes were filmed underwater – an apt location to remind people of the panicky feeling of being unable to breathe as normal.
Eight-year-old Emma Frank was filmed blowing bubbles (a visual way to show breath). Some of the bubbles that she blows in the video have the ‘No More CF Angels’ rose image in them - an image used often in the campaign for access to CF precision medicine.
Seasoned CF campaigner little Ivy Weir (5) also has a cameo role in the video.
Breathe With Me website.
It's Just Our New Normal - Grace McKenzie
Kirsty Harvey - An Inspirational Life
Order a copy
Andrew Alan Matthews art
Artist Andrew Alan Matthews is raising funds for the Cystic Fibrosis Trust in support of his close family members who have the condition. He has produced a range of modern cityscape paintings on canvas and a range of t-shirts. For each t-shirt sold, £1 comes to Trust, and with every canvas painting sold £5 is donated to the Trust.
Paintings can be commissioned, and prices start from £100 where a proportion would go to Cystic Fibrosis Trust.
Andrew has sold artwork to companies and private collectors and is a bestselling artist on the online platform Artgallery.
If you would love one of these modern cityscape paintings or any t-shirts please go to andrewalanmatthews.co.uk where you can see further examples of his fabulous work.
Peter Rackley Cards
Because of his personal connection to cystic fibrosis, Peter Rackley from Margate in Kent has kindly decided to donate to us 10p from every card sold from his new enterprise, Peter Rackley Cards.
The beautiful designs are available to all from Peter's Facebook page.
See Your City
To find out more, visit their website.
Our amazing supporter Sheila McAdam lovingly paints and designs bespoke watercolours of flowers and certain wildlife. Each individual piece is made in support of Sheila’s beautiful great niece Freya who has cystic fibrosis, with all profits kindly donated to the Cystic Fibrosis Trust.
Paintings can be commissioned of any flower and prices start at £100, with postage and packaging as extra.
All paintings are sent mounted with a backing board and cover sleeve. They measure approx. 20in x 16in
If you would love one of these beautiful and individual pieces contact McAdam Art or visit Sheila's Facebook page, where you can see further examples of her work.
Games to Create the Football Thinker
Games to Create the Football Thinker is a great value football coaching/training handbook that will bring an extra dimension to your football coaching sessions.
A handy 110-page digital book it is easily accessible for a busy coach on their mobile device.
Full of inventive ideas on how to really get your players thinking about, and enjoying, your training session, it replays famous moments in football, and enables you to create new, fresh sessions. This book will be a useful reference both before and during your coaching session.
ALL proceeds from the sale of this book will go to the Cystic Fibrosis Trust.
Head over to Ebay to purchase the book - you will receive a PDF (45MB) file.
Banana Crumble is a family-run business that wants to give back to others in the wider community. What you see is what you get - Banana Crumble is a free prize cash draw, made possible by using advertising revenue to fund prizes. visit their website.
. To find out more and to sign up, please
PLEASE NOTE: you must be over the age of 18 to participate.
Broken Heart Tees
Broken Heart Tees have kindly offered to donate £2 per sale of their wonderful "Charitees" to the Cystic Fibrosis Trust. Married couple Angie and Kevin have chosen to support the Cystic Fibrosis Trust as Kevin, 51 years old, has cystic fibrosis himself. The couple are passionate about raising awareness and supporting the Cystic Fibrosis Trust however they can. This is a perfect way for people to raise awareness by wearing a t-shirt relating to cystic fibrosis and at the same time, will be generating donations to the charity.
Head over to their website or follow them on Facebook.
Company 'KitKase' have kindly decided to show their support to our cause by making a beautiful bespoke case on our behalf with a £15 donation from each sale going directly to the Trust. Let's hear why....
"KitKase are passionate supporters of the Cystic Fibrosis Trust and the great work they do supporting people with cystic fibrosis, and those who care for them on a daily basis.
"One of KitKase’s directors and founders was diagnosed at birth but he is a perfect example of how with the right attitude, advice and a strong support network, cystic fibrosis is no longer a barrier to building a successful career and leading an active family life.
"Each year the Cystic Fibrosis Trust invests many millions of pounds into cutting-edge research to tackle the big challenges faced by people with cystic fibrosis and it’s essential they continue to receive support and sponsorship from companies such as ourselves in addition to the individual sponsors/donors who do such a fantastic job."
Having sampled the case here at the Trust we can confirm it’s made with an exceptional standard that we think you'd enjoy, and we would also like to take this opportunity to thank all at KitKase for their dedication and hard work on our behalf!
You can find out more and make your purchase here.
Charity Car is a scheme backed by CarTakeBack, the UK's largest car recycling network. Head to the Charity Car website, and select the Cystic Fibrosis Trust as your chosen charity - the Trust will receive 100% of the car's scrap value, and if there's enough life left in your car, Charity Car will raise the maximum value through auction!
For the month of June, the Cystic Fibrosis Trust will be Charity Car's charity partner.
Do something really special and join the thousands of people who have already donated their car.
'Uncommon Sense and Comic Nonsense'
For 30 years, since Dr James Simpson's granddaughter Sally was born with cystic fibrosis, he has raised over £75,000 in royalties for cystic fibrosis research by writing seven books, which are a lovely blend of seriousness and humour. Some of them became best-sellers.
His latest book, 'Uncommon Sense and Comic Nonsense' has just been published by Steve Savage Publisher, and is priced at £5.95. 100% of the royalties will go to the Cystic Fibrosis Trust. The book can be purchased from most bookshops, Amazon, or from the publisher.
Dr Simpson is a past Moderator of the Church of Scotland and a chaplain to her Majesty the Queen. This book is dedicated to the members of Dornoch Cathedral, where he was minister for 21 years, and to the members of Royal Dornoch Golf Club where he was a past captain.
'Inspiration' by Susan Graham
Carrickfergus singer Susan Graham has released an album, 'Inspiration', in aid of the Cystic Fibrosis Trust. Susan has lived with a close personal connection to CF, having looked on as her sister Zoë has dealt admirably with the condition for over 20 years.
You can purchase Susan's CD for £10 - all proceeds go to the Cystic Fibrosis Trust.
Music on the album ranges from sacred and classical to popular secular songs, folk and musical theatre. Susan sings in the Belfast-based choir, Grosvenor Chorale.
Reusable cotton tote bags
We are so excited to share, on behalf of the South Lincs branch of the Cystic Fibrosis Trust, this fantastic reusable cotton tote bag. 100% of the proceeds will be donated to the Trust to help us continue our fight for a life unlimited by cystic fibrosis.
The duck is a symbol of remembrance for a very dear lady lost to cystic fibrosis. Helen Bond was a founding member of the South Lincs branch of the Cystic Fibrosis Trust. She was an avid collector of rubber ducks with over 100 different pieces in her collection! She lost her battle with cystic fibrosis in December 2014, aged just 28 years. The continued use of the rubber duck keeps her memory alive to all those who knew her, and helps the South Lincs branch spread awareness of the condition.
If you would like to get your hands on one of these limited edition bags (currently only 1,000 in circulation), please get in touch with the South Lincs branch directly by private messaging their South Lincs Facebook page.
Bags cost just £3 each plus postage and packaging.
Our fabulous supporter Lesley McMurray designs and makes her own jewellery using quality recycled materials. She designed this special keyring featuring a pair of lungs and the words 'Never never give up', and will kindly donate 50% of the proceeds to the Cystic Fibrosis Trust. These keyrings costs £4 plus postage and packaging. Each keyring is made to order.
Want one? Snap them up now on Lesley's Facebook page!
The lovely team at My Cupcake Toppers have kindly agreed a reduced rate for our supporters to purchase either rice paper or edible icing cupcake toppers! They start from £1 (+ postage and packaging) and are available in two designs - 'Cystic Fibrosis Trust' logo, or 'Cystic Fibrosis why we're baking'. Head over to My Cupcake Toppers to order yours now, or call them on 0800 043 4557 or drop them an email.
Duck pin badges
We're happy to share these gorgeous duck pin badges on behalf of the South Lincs branch of the Cystic Fibrosis Trust. 100% of the proceeds will support our fight for a life unlimited by cystic fibrosis. The duck is a symbol of remembrance for a very special lady lost to cystic fibrosis, Helen Bond. Helen was a founding member of the South Lincs branch - and an avid collector of rubber ducks! She lost her battle in December 2014 aged just 28 years old. The rubber duck keeps her memory alive and helps the branch spread awareness of the condition. To get hold of your very own duck pin badge, send a private message to the South Lincs branch Facebook page.
Etsy knitted toys
Lesley & Julie from Rugby have set up their own shop on Etsy, selling their handmade knitted toys with 100% of the sale price coming to the Cystic Fibrosis Trust. To order yours today just head to their page on Etsy.
Sports massage offer
Optimum Body Sports Massage are offering half price sports massages to all those who are fundraising for the Cystic Fibrosis Trust. Not only that, but they are going to donate £15 to the Cystic Fibrosis Trust for each massage booked! So, if you’re in and around Oxford and Oxfordshire and fancy a pre- or post-event treatment, perfect for anyone training for a marathon, hike or obstacle course, then please go to their website for full details and to book.
Wristbands for cystic fibrosis
A new style of wristband has been designed and produced to raise funds for the Cystic Fibrosis Trust.
The Apter family along with a group of friends have produced the wristband to raise funds for the Trust in memory of their lovely son James. James had cystic fibrosis and was also diagnosed with leukemia in April 2011. He lost his battle against leukemia on 8 September 2011. Selling the wristbands will keep James' memory alive whilst raising funds for a charity that is very close to his family's hearts. Order your wristband today.
Mr & Mrs Creepy have been in business since May 2013, sculpting these creepily cute creations from polymer clay. With lots of creepy characters and Plushy creations to choose from you’ll be spoilt for choice. Why not treat your family and friends to their very own Creepy? Five per cent of each sale goes to the Cystic Fibrosis Trust!
Would you like to own an original piece of artwork? Art Transplant was created by artist Luke Yates after losing his wife, Sam, to cystic fibrosis after she waited more than three years for a double lung transplant. The works showcased in the gallery will be sold one at a time. All proceeds will be donated to the Cystic Fibrosis Trust.
These Are Our Days
A song performed by St Aidan's CE High School, Harrogate to raise funds to support the Cystic Fibrosis Trust, in memory of former St Aidan's student Helen Hawcroft. Download from iTunes. All proceeds will be donated to the Trust.
Lungfest has put together a compilation album to raise awareness for cystic fibrosis. 'Courage Over Fear' is an album consisting of tracks from people with direct links to cystic fibrosis. The album is available in physical and digital form. You can purchase the CD or download it from from iTunes, Google Play, Amazon, Spotify and Deezer
All profits will go to the Trust.
Designed by Sophie Cranston, Libélula is fast becoming the label to watch. £10 will be donated to the Cystic Fibrosis Trust from every Millie dress sold online. Contact Sophie or Ella, call 01256 861 458 or visit their website.
The Growing Hope rose
The Growing Hope Rose is a beautiful, deep red floribunda with a powerful fragrance, and was created especially to raise awareness of cystic fibrosis and funds for the Cystic Fibrosis Trust. The rose is the result of a partnership between growers 'World of Roses', and mum Catherine Upstone, who has a daughter with cystic fibrosis.
Height and spread: 80cm x 60cm (32in x 24in).
The roses can be purchased from World of Roses by calling 08452 606 888 or by ordering online. The Growing Hope Rose is £19.99, and for each rose sold 'World of Roses' will donate £3 to the Trust.
Cystic fibrosis jewellery
Heath Morgan Beads and Jewellery have a freshly updated website dedicated to selling loose beads, accessories and handmade jewellery.
A percentage of all sales is donated to the Cystic Fibrosis Trust, and a larger amount from the fundraising jewellery, including the new ‘hope for a cure' bracelet and keyring.
If you would like to have a piece of jewellery designed in memory or support of a loved one, then contact
to create that special piece.
Lorraine Barnes, a mother of two children with cystic fibrosis, has added some striking hooded sweatshirts to her range of merchandise that aims to raise money for the Trust and to raise awareness of cystic fibrosis. They cost £20 and 20 per cent of the proceeds goes to the Cystic Fibrosis Trust. There's also a range of t-shirts and a tote bag on offer, and they can all be ordered online.
A few of my poems
A short book of poems written by Sheila M Newman; some happy, some sad, but all easy to read. The first poem is dedicated to Sheila's granddaughter, who has cystic fibrosis. Price £3.50. To order, call 01425 274021 or email Brian Newman. All proceeds go to the Cystic Fibrosis Trust.
The Little Cook Book
'The Little Cook Book' written by Alex Sayers for her son Enzo has already raised over £13,000 for the Trust. The cook book was inspired by meals savoured during a childhood spent in Italy watching her Italian grandmother in the kitchen.
The easy to follow recipes include 'Nonna Lisa's Meat Balls', 'Italian Chicken', 'Creamy Mushroom Pasta', 'Sausage Bake' and many more tempting recipes.
TV Chef Gino D'Acampo has also contributed two recipes as well as personal trainer Ben Mudge.
The cook book is still available at £10 with all proceeds going directly to the Trust.
Please contact Alex Sayers.
The WISH cystic fibrosis bracelet
Sarah and Helen from WISH Handmade Jewellery have come together to create this exclusive bracelet to raise funds for cystic fibrosis. The bracelet has 13mm metal beads with sp charms and is available to buy online under the 'Collections' page. The bracelet costs £26, of which 25 per cent goes to the Cystic Fibrosis Trust.
Portraits of cystic fibrosis book
Photographer Simon Wiffen's book '47 / A Life With Cystic Fibrosis' is a collection of intimate and compelling portraits, exploring the realities of living with cystic fibrosis.
Each subject featured in the book offers their insight into life and the condition.
For each copy sold, £5 will be donated to the Cystic Fibrosis Trust. The book is available to order from Simon's website for £20.
Big Chef, Mini Chef
Big Chef, Mini Chef has been an idea in development for quite a few years, but only came to fruition in 2018. The book is inspired, created and dedicated to Armin Constantin Baran, son of chef and author Matei Baran. This book celebrates Armin’s bravery whilst battling the illness cystic fibrosis. Armin’s life has been fraught with operations and recovery and he continues to have regular physiotherapy sessions and takes multiple tablets each day to combat the horrendous effects cystic fibrosis has on his young body. Despite all of the medication, Armin is a happy and brave boy who continues to inspire those around him. The illness and the situation have formed an extremely close bond between father and son and Matei was dedicated to leaving a legacy to Armin.
Throughout this journey Big Chef, Matei has been working with children to create simple, yet restaurant-standard recipes celebrating their favourite dishes as well as engaging local schools and students to help them creatively develop their culinary tastes and skills.
We hope you are inspired to cook with children and find exciting ways of presenting some of your family favourites.
All proceeds after costs from book sales will go to the Cystic Fibrosis Trust - buy the book today.