How to involve the CF community in your work

We gained real lived experience from people with CF focused specifically around our questions. The people that attended the focus group were engaged, open and brought extremely relevant experience and knowledge to the table. The focus group was invaluable and will support the future of our project.

Project Lead, Drug Discovery Syndicate  

How are you going to involve the cystic fibrosis (CF) community in your project, clinical trial or research study?  

If you're unsure, we're here to help.

We have an established group of CF representatives (people with CF and parents of children with CF) ready to share their lived experience to support your project.   

We endeavour to provide an easy, straightforward process for you to engage with our community and collaborate, getting maximum benefit from the engagement and any involvement activity.  

Guide for sponsors

To find out how to involve the CF community in your project, and how we can help you achieve that, please get in touch with us  at  involvement@cysticfibrosis.org.uk.  

You can find out more about how we support research on our dedicated sponsor page

Information for Sponsors

Find out how how the Trials Accelerator can support Sponsors who have a CF therapy portfolio.

Interested in involvement?

Got questions about community involvement? Get the answers you need now.

Trials Accelerator

The Clinical Trials Accelerator Platform is a UK-wide initiative, bringing together CF centres to help the CF community access and participate in CF clinical trials.

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