Join the conversation

Get involved with the CF community.

There are many different ways to get involved with the conversation about cystic fibrosis. If you want to speak to other people affected by the condition and share tips, support and advice, check out our Forum.

We'll also be using this area of the website to share your stories, bringing to life the real issues faced by people with cystic fibrosis and celebrating the individuals that make up the CF community.

Case studies

Meet Clara

Clara, 14, is a keen runner and hopes to be a writer when she's older. Read about her experience as the youngest person in the UK to trial Orkambi.

Meet Stuart

Stuart, father of two, talks about his experience travelling 200 miles to attend clinic appointments for a research trial and the effect of the treatment.

Meet Steve

Steve explains how the Trust's health and wellbeing grant helped him keep up with exercise when his rowing machine broke.

Activity library

As well as interesting articles and news items, you'll find out Activity Ambassador profiles here - find out how they are working hard to incorporate physical activity into their lives.

Become a case study

Share your story with the CF community and help bring to life the everyday struggles and successes that are part and parcel of living with cystic fibrosis.

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