Information and support for young people

We know that being a young person with cystic fibrosis (CF) isn't one size fits all

We've got loads of information for young people with cystic fibrosis of all ages. Some of our packs include:

Haven't found what you're looking for? Take a look through all of our information packs and factsheets - we cover everything from CF treatments like IVs and physiotherapy to Disability Living Allowance (DLA) and housing.

Living with CF as a young person

Together with young people with CF, we have developed a series of podcasts that discuss what it's like to be a young person living with cystic fibrosis.

Useful websites

Beat offers information and talking services about eating disorders.

Brook offers sexual health and wellbeing information for young people under 25.

Calm provides information and talking services for young men.

Child Bereavement UK offers support for grieving children and young people and supports families when a child is dying.

Childline is a free 24-hour counselling service for children and young people under 18.

Citizens Advice can provide Information on many different topics including immigration, housing and debt.

Frank offers confidential information and advice on recreational drugs and alcohol.

LGBT Foundation provides advice and information for lesbian, gay, bisexual and trans people.

Migrant Help offers advice and services, including translation, for refugees and asylum seekers.

Samaritans offers a safe space to talk about the things that might be worrying you. You can contact them by phone, email or visit your local branch. 

Young Minds is the UK’s leading charity committed to improving the wellbeing and mental health of children and young people.

Contact our helpline

Our confidential helpline offers a listening ear and information and support on any aspect of cystic fibrosis.

Secondary school

Explore our secondary school resources, which include a magazine for young people.

Higher education

Whether you're attending university or choosing a different path, we've got loads of information to help.


Storing your meds, packing lists and tips for parents - we've got everything you need in our festival pack!

My friend has CF

Want to tell your friends about your condition, but aren't sure how to do it? Send them here.

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