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Cystic Fibrosis Trust

Aged 11-25? We've started a digital space for you to have your say on how cystic fibrosis (CF) affects you. Parents, teachers and doctors have plenty to say on the matter; now’s your chance to be heard!

There are plenty of ways to get involved with the Trust and help other young people with CF. Here are some current opportunities that you might find interesting:

Building Brighter Futures

We are very excited to announce Building Brighter Futures, a three-year programme for 10-18 year olds with cystic fibrosis, funded by Children in Need. Building Brighter Futures will include talks, Q&As and workshops to give you practical skills to manage your CF alongside other interests. We hope to cover a broad range of topics from mental health and isolation, to coding, blogging and vlogging.

University and CF

Our first series of Building Brighter Futures workshops is for 16-18 year olds who are thinking about going to university. The workshops are practical, fun and have been designed to help you feel more confident about your decisions going forward. You'll also have the opportunity to talk to other young people with CF who are in the same position as you, as well as some who are currently at uni or who have already graduated.

The sessions are:

  • 4 January, 6-8pm. Finance, benefits and budgeting with the Trust's Welfare and Rights Advisor Sangeeta Enright
  • 11 January, 6-8pm. Stress-busting, wellbeing and finding a balance between study, health and social life
  • 18 January, 6-8pm. An open session to discuss any questions or concerns with current university students who have CF
  • 25 January, 6-8pm. A chance to feedback on your experiences of the workshops and help us improve in the future. Also find out other ways that you can be involved with the Trust going forward

The workshops are run on Google Hangouts and are totally free. Express your interest in the form below or email hollyrae.smith@cysticfibrosis.org.uk or bahar.mustafa@cysticfibrosis.org.uk for more information.

Coding workshop

As part of Building Brighter Futures, we’re running a 6-week online course on coding and programming in partnership with an expert coder in 2019! This course will be suitable for beginners and will get you on the road to developing the skills you’ll one day need to design that app you’ve always dreamed about! Express your interest in the form below.

Mental health and CF

Mental health is being talked about more and more, with today’s generation of young people exhibiting concerns with their own mental health and wellbeing. Because CF and CF-related conditions effect people in such a varied way, we are discovering that mental health conditions impact the lives of many young people with CF but are not always prioritised in the way that physical symptoms are, and might therefore be neglected. But our mental health is important! If we’re not being kind to our minds, then it can make being kind to our bodies more challenging.

We will be hosting a mental health and wellbeing talk led by young people with CF. If you’ve got questions that you’d like to hear answered, tweet us @cftrustyouth, or express your interest in the form below.

Youth Advisory Group

We are always looking for people to be part of our Youth Advisory Group, a way for young people to influence work at the Trust and ensure that the voices of young people with CF are heard. YAG is made up of young people aged 14-25 who are living with CF or close to someone living with CF.





Children in need

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This programme is funded by Children in Need and is developed for 10-18 year olds with cystic fibrosis
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Young lives

Are you aged 14-25 years with cystic fibrosis? Do you want to make change happen? Tell us all about it!

Youth Advisory Group

Find support

There's loads of support available for people with cystic fibrosis and their families, from grants to help with taking your medication abroad.

Discover more

Festival fever

Download our festival planning information PDF - it's full of loads of great tips for making sure you have the best time possible, a useful packing checklist and a medical information template.

Check it out