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Cystic Fibrosis Trust

Aged 11-25? We've started a digital space for you to have your say on how cystic fibrosis (CF) affects you. Parents, teachers and doctors have plenty to say on the matter; now’s your chance to be heard!

At the end of October, young people living with cystic fibrosis took over and led a week of projects and competitions. There was fun stuff, serious stuff, competitions, campaigns and loads more. Just take a look at all the amazing things you helped to create, and don't forget to check out 'Make your mark', which is still open until 30 November!

What happened?

Hackathon

You and your friends got together and competed for prizes, including £50 in Amazon gift vouchers, by coming up with new ideas for changing the face of CF adherence.

We gave you just five hours to come up with all your fantastic ideas, and you didn’t disappoint! Register now to receive your swag bag in time! Kindly sponsored by St James's Place Foundation.

Got any thoughts, comments or suggestions for the next Hackathon? Get in touch!

Make your mark (Sunday 23 Oct)

Applications still open!

Budding artists and designers, read on for a challenge that could enhance your portfolio and get your work seen.

The challenge

The Trust is working to broaden the support we offer to young people living with cystic fibrosis. We want to create exciting opportunities and useful, tailored information, as well as raise awareness about CF among young people in general. Pass the Mic is just the beginning. To launch our new commitment to supporting young people and to differentiate it from the rest of the work the Trust does, we want a fresh look. This is where you come in.

Design a logo for our ‘empowering young lives’ project and win the opportunity to work with our award-winning design team! Your logo can be any size and make use of any colours and medium you like. It should be fun and engaging, and reflect the theme of empowering young people living with cystic fibrosis. If your design is chosen by a panel of judges (aged 14–22 and living with CF) we’ll invite you to our offices in London to work with our brand team. You’ll have the opportunity to perfect your design and create a brand that matches our brand guidelines, to be used on materials that the Trust creates for young people. You will also get to design a spread in the CF Life magazine! This is a fantastic opportunity for a budding designer to add to their portfolio and gain experience working with a professional team.

The deadline is 30 November and you can enter by sending your design to cfyouth@cysticfibrosis.org.uk.

Education and me (Monday 24 Oct)

What’s the one thing you wish someone had told you before your first day of school? What tips and tricks have you learned along the way? And what would you say to biology teachers tackling CF as part of the GCSE curriculum?

We asked you to contact us if you were interested in contributing to our new magazine for 11 year olds starting secondary school, and we still want to hear from you!

A helping hand (Tuesday 25 Oct)

Grants and helpline support aren’t just for parents. We let you know about getting the most out of the services we offer, and you can still apply Joseph Levy Education Fund, which helps young adults with CF over the age of 18 with the costs of higher education, or other professional qualifications. Check it out!

World of work (Wednesday 26 Oct)

A panel of young adults with CF discussed their work and how they balance it with their other ambitions and CF treatments, as well as answering your questions about life after education.

Game the night away (Thursday 27 Oct)

Xbox controller

You joined the Trust’s finest on X-Box Live, tuned into the live stream and send us questions via Twitch (and let’s not forget, put us through our paces on Halo Four and Minecraft…)

Battle of the bands (Friday 28 Oct)

Thomas Skeldon won Battle of the bands, snatching himself a bagful of goodies and the chance to headline Lungfest this year! Lucy Crisp and Sarah were our two runners up, but we wish you all could have won…

The week might be over, but we’ll be filling this page with exciting new projects, competitions and, most importantly, content made by you! Keep your eyes peeled…