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Experiences of Living with Cystic Fibrosis; The impact on children, young people, adults and their families

Details

Therapeutic category
The type of treatment or therapy being studied. A therapy could range from a medication addressing a particular characteristic of CF to a device or activity e.g. exercise

Behavioral

Trial status

Open

Full title

Experiences of Living with Cystic Fibrosis; The impact on children, young people, adults and their families

Through interviewing both the patient with CF and their families, this study hopes to establish a clearer picture of the effect the condition can have on the individual themselves and on their immediate family, in various aspects of their lives. From this, we hope to understand the key challenges facing these populations to help tailor the development of services.

Trial type

Non-medication

Length of participation
The length of time a participant will take part in a trial, from the first to the last appointment

1 day

Intervention
The name of the treatment or therapy being researched

None

Recruitment target
The number of participants who need to be recruited for the trial in the UK

100

Last edited date

09 October 2017

Sponsor

UCL Great Ormond Street Institute of Child Health

Sponsor type

Academic

Who can take part?

Top inclusion criteria
  • 11yrs + with CF
  • 11-25yrs Sibling of someone with CF
  • Parent/Carer of someone with CF
Top exclusion criteria
  • Insufficient English to complete Quality of Life interview

CF centres running this trial

Recruiting

Great Ormond Street Hospital

Address

Great Ormond Street London WC1N 3JH

Recruitment ends

December 2017

Contact

Bryon, Mandy

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