More than CF

In the Youth Advisory Group (YAG), we believe it’s important to celebrate the amazing things young people with cystic fibrosis (CF) can do. We are calling on children and young people with CF to share their passions and creative pieces for our latest project ‘More than CF’.

Especially now, when it’s easy to feel like you’re just part of a category, it’s important to celebrate what makes you unique and to take time to do the things that you enjoy.

Our latest project “More than CF” is about bringing young people with CF together, to show everyone that we’re so much more than our condition. Show us your passions or skills, what you’re learning or what makes you happy or proud and we’d love to post it on our Instagram as part of this project!

Show us your passions

yellow adobe design with cartoon bunting, lungs, medicine, books and camera, with 'I am more than cystic fibrosis' written in middle

This could be:

  • Art, of all forms
  • Pottery or woodwork
  • Singing, song-writing or music
  • Creative writing
  • Performing arts
  • Science experiments
  • Dance
  • DIY and decoration
  • Inspiring exercise ideas
  • Coding

Get involved 

To get involved, please send your creations to and we will share them on our Instagram page. You can also share them on your own social media and tag us, or use the hashtag #morethancf.

By sending us your (or your child’s) picture/video etc you are agreeing to us re-sharing it on our Instagram. If you are under 13 years old please make sure your mum, dad or carer sends us your creation from their email address. Please tell us if you would like us not to publish your first name with your creation.

Please remember not to use any swear words or say anything offensive. We will try our best to share all your creations as they are but sometimes we might need to ask you to make some changes such as tips for filming or advice on word count, so keep in mind the following guidelines:

  • Images: maximum number is 10
  • Video: please keep below 1 minute
  • Text: please aim for a word count of 500 words or less

We can’t wait to see what you come up with!

Youth Advisory Group

Our Youth Advisory Group (YAG) is a way for young people with CF aged 14-25 to influence the work of the Trust and have their voices heard.

Information and support

We've got loads of information and support made by and for young people with cystic fibrosis.

Youth programme

From Games Nights, to free online skill workshops, to movie nights, our youth programme has something for everyone. 

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