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Cystic Fibrosis Trust

Transition to adulthood

The advances in care made through the efforts of organisations like the Cystic Fibrosis Trust mean that people with cystic fibrosis are living longer, and there are now more adults living with cystic fibrosis than children.

Part of growing up with cystic fibrosis is the transition from paediatric care to an adult cystic fibrosis service. In becoming more responsible for your own care and treatments, you will learn the skills you need to manage adult life and get the most from activities such as employment, going away to college, or living with a partner.

The transition period should take a few years, starting as a teenager. It will involve lots of consultations between you, your clinic or specialist CF centre, your parents or carers and clinicians to make the move as easy as possible.

As part of the preparation for moving from paediatric to adult care, you can see the team members in your outpatient clinic on your own for the first part of your consultations, and should be involved in all decisions about your treatment.

The paediatric team should provide a plan for what the transition involves, including the date of your final paediatric clinic or admission before moving on to adult care (usually between the ages of 16-18, depending on the centre). The team will also prepare a 'transition document' about you for the adult centre, summarising your clinical details, and you should be able to make your own contribution, with any issues you feel are important.

You can get information about your new adult centre from the paediatric service, and if you have the choice of several centres to attend you should meet the teams at each, and visit the facilities early on. If you have any worries, such as who will flush a port, or how home IV antibiotics are organised, the adult team will be able to help.

You may find that the two teams are very different in the way they work but don't worry, both want the same goal, for you to stay as healthy as possible.

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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More information

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