Your donation will make a difference:
Cystic Fibrosis Trust

Cystic fibrosis factsheets and information packs

Browse the Cystic Fibrosis Trust's information resources to help you understand some of the issues related to cystic fibrosis (CF) more clearly.

Diagnosis of cystic fibrosis

Diagnosis in adulthood
This factsheet contains information about cystic fibrosis aimed at people who have been diagnosed with the condition in adulthood.

Family genetic testing - 'cascade screening'
A guide to the family cascade screening programme for cystic fibrosis.

New diagnosis information pack
A series of resources to help families who have just found out that their child has cystic fibrosis.

The sweat test for cystic fibrosis
Sweat tests can be used to help rule out or diagnose cystic fibrosis. This factsheet provides information on the sweat test, how it works, and why it is used.

Treatment of cystic fibrosis

Cystic fibrosis and bone health
In people with cystic fibrosis, thinning of the bones can occur at an earlier age than in the general population. This factsheet describes how bone health can be affected in CF and the implications of this, how bone strength is measured, and options for prevention and treatment of thinning bones.

Cystic fibrosis-related diabetes
Cystic fibrosis-related diabetes (CFRD) is common in adults and adolescents with cystic fibrosis. This factsheet explains what diabetes is and why it can be associated with CF, and the care and treatment someone with CFRD should expect.

Home intravenous therapy
This factsheets addresses some questions you may have about home intravenous antibiotic treatment and compares the advantages and disadvantages of home IVs compared to those given in hospital.

Inhaled therapy
Inhaled antibiotics are a common part of the cystic fibrosis treatment regime. This factsheet provides information on the different types of nebulisers available, how to look after your nebuliser and the types of medications that can be nebulised.

Lung transplantation in cystic fibrosis
This factsheet has been written to help people with cystic fibrosis who are considering lung transplantation. It contains information about the assessment procedure, waiting time, the operation and follow-up, and answers some frequently-asked questions.

Melioidosis and tropical travel
Melioidoisis is a rare but potentially life-threatening infection that can be contracted in some tropical countries. This factsheet contains advice on how to reduce your risk of contracting the infection if travelling to a country where meliodosis is present. 

Nutrition: a guide for adults
This factsheet provides information for adults with cystic fibrosis on how to maintain good nutritional health.

Nutrition: a guide for children and parents 
This factsheet provides information for parents and carers on how to maintain good nutritional health in children with cystic fibrosis.

Nutrition: a guide for feeding infants
This factsheet provides information for parents and carers on how to ensure good nutritional health in infants with cystic fibrosis.

Physiotherapy: airway clearance
Looking after the chest and keeping the lungs clear is extremely important in cystic fibrosis. This factsheet explains why it is important to keep the lungs clear and the various airway clearance techniques available.

Physiotherapy for babies and toddlers
Looking after the chest and keeping the lungs clear is extremely important in cystic fibrosis. This factsheet is an introduction to chest physiotherapy and its use in babies and toddlers with cystic fibrosis.

Portacaths in cystic fibrosis 
A portacath (port) is a totally implantable venous access device (sometimes called a TIVAD for short), which is placed under the skin and is a means of delivering medication to the body easily and effectively. This factsheet provides answers to some common questions people have about portacaths,

Steroid treatment in cystic fibrosis
This factsheet contains information on steroid treatment in cystic fibrosis, including the different types of steroids, what they are used for, how they are given and their possible side effects.

Urinary incontinence
Urinary incontinence may be experienced by females, and, to a lesser degree, males with cystic fibrosis. This factsheet explains why urinary incontinence may occur, and what help is available.

Living with cystic fibrosis

Employment 
Series of six factsheets covering various aspects of employment, including finding the right job, legal issues, and a factsheet for employers.

Higher education
Series of three factsheets aimed at teenagers or young adults considering higher education, including information for tutors and accommodation officers.

Housing for people with cystic fibrosis
Series of four factsheets about housing, including finding a suitable home, renting, buying and what to do if you have lost or may lose your home.

School and cystic fibrosis
This factsheet provides information about all aspects of cystic fibrosis and school for both teachers who have a pupil with cystic fibrosis, and for parents whose children with CF are just starting school, changing schools or have a new teacher.

Starting a family
Find out more about the considerations involved when deciding whether or not you'd like to start a family if you or your partner have cystic fibrosis.

Transition from paediatric to adult care: Guide for young people
This factsheet provides information for young people about what to expect when moving from paediatric to adult care, and explains the differences between the two.

Transition from paediatric to adult care: Guide for commissioners and hospital / clinical teams  
The transition from paediatric to adult care should be a planned, collaborative process involving professional caregivers, the young person and family. This factsheet outlines how to ensure the transition process runs smoothly for your patients.

Support available for people affected by cystic fibrosis

Disability Living Allowance (DLA)
Details of how to apply for DLA for your child (under 16), focussing on completing the claims form in relation to care needs.

Financial help
This factsheet provides information about the financial support that may be available for people with cystic fibrosis and their families from the Cystic Fibrosis Trust and other organisations.

Prescription charges
In England many people with cystic fibrosis still have to pay for their medical prescriptions. This factsheet provides information about prescription charges in England, including the current costs, how charging works, who is exempt, and the CF Trust’s stance.

The Cystic Fibrosis Trust Support Service 
This factsheet provides information about the information and support available from the Cystic Fibrosis Trust Support Service, including our helpline, welfare grants and publications.

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch