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Cystic Fibrosis Trust

CF Connect – Peer support

CF Connect is a new service putting you in touch with a trained parent volunteer who you can talk to in confidence about having a child with cystic fibrosis.

We understand that cystic fibrosis can be an isolating condition for families.

The risk of cross-infection means parents of children with CF cannot meet up as easily as they might like, and often miss out on the chance to talk to someone who knows how they feel. That’s why we’ve set up CF Connect: a service where you can speak to a trained volunteer who also has a child with cystic fibrosis.

CF Connect volunteers are all parents of children with CF, so as well as offering a listening ear, advice and support, and the chance to share experiences, they also understand the challenges you may be facing.

Whether your child has been recently diagnosed with CF, or whether you’ve got worries or questions further down the line, CF Connect can put you in touch with someone who understands.

CF Connect is run by our helpline team – please get in touch and we will put you in contact with a CF Connect volunteer by phone or email. You don’t have to be a parent to use the service – you could be a grandparent, uncle, aunt, or even a friend of the family. We have volunteers across the country, who have children of different ages and are there to help.

To connect with another parent through CF Connect contact our helpline on 0300 373 1000 or helpline@cysticfibrosis.org.uk.

How CF Connect can help

I just needed to talk to someone who understood what I was feeling because they’d been there.

Kirsty, mum to George age 10
Could you be a CF Connect volunteer?

We’re looking for volunteers from across the cystic fibrosis community to provide this vital support service. The hours are flexible – you can give as much or as little time as you want, and we’ll provide the training and support.

If you’re interested in finding out more about volunteering, email volunteering@cysticfibrosis.org.uk.
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