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Cystic Fibrosis Trust

Emergency grants

We provide grants to support people living with cystic fibrosis, or their parents, guardians, partners, children, family or carers, to meet the unexpected costs that can arise.

These grants can help ease the burden of cystic fibrosis. Read on to find out more about the three types of emergency grant we can offer.

1) Transplant grants

When people have lung or liver transplants, or while being assessed for a transplant, they often have to travel to hospitals a long way from their usual specialist centre, or travel more frequently. You may need to go to a hospital at very short notice and need to get a taxi. Similarly families or carers may have unusual levels of travel, or need to arrange an overnight stay.

If this situation applies to you or someone you care for, you can apply for a grant of up to £250 to meet these costs.

Obviously, when you are going into hospital, you may not have time to apply for a grant. So you can apply for a transplant grant up to two months after your hospital stay.

2) Small grants

These are grants of up to £150 to pay for emergency needs. This could include things like:

  • Purchasing essential, smaller cost items, for example buying hypoallergenic pillows and mattress covers for a person with cystic fibrosis with allergic bronchopulmonary aspergillosis.
  • Emergency household repairs, for example for leaks causing damp and mould.
  • Unexpected travel or other costs for informal carers, for example to look after your child if you have a long hospital stay.
  • Services like professional cleaning of a new home where the level of dust and dirt would adversely affect health.
  • Annual Prescription Pre-payment Certificate for people unable to meet their prescription costs.

When applying for these grants please let us know how much the goods, services or repairs are going to cost. You may need to estimate how much travel or carers’ costs will be.

You can still apply for a small grant after you’ve made the purchase, paid for the services or met the costs yourself, but please apply as soon as possible.

3) Funeral grants

Unfortunately, we do not have sufficient resources to pay for the full costs of funerals. We can offer a grant of £750 to help, which we can pay to the person organising the funeral, or directly to the funeral director if this is more convenient.

If you are on a low income and in receipt of certain welfare benefits you may be able to get further help from the Social Fund (funeral payments). Please contact the Bereavement Service helpline on 0345 606 0265 or visit www.gov.uk for further information and the eligibility criteria. Please note that receipt of a funeral grant from the Cystic Fibrosis Trust (or another charity) may be taken into account by the Social Fund when calculating your award.

Print the application form and send it to the address below. Alternatively you can download the form and e-mail it to helpline@cysticfibrosis.org.uk.

Applying for emergency grants

Print the application form and send it to the address below. Alternatively you can download the form and e-mail it to helpline@cysticfibrosis.org.uk.

We need a confirmation statement from a health care professional, such as your specialist centre social worker, clinician or nurse, to confirm that you, or the person you care for has cystic fibrosis, and that the application is accurate.

There is a space on the form for them to give this confirmation. If however, you are not able to get to your specialist centre, please arrange for them to e-mail helpline@cysticfibrosis.org.uk with their confirmation. They will need to give their name and contact details, and also your name, date of the application and amount requested, so we can match their statement to your application. 

Payment

Grants can be paid by cheque or BACS transfer to your bank account. A BACS transfer can be processed quicker and is preferred if possible. We aim for payments to be made within a week of receiving the application.

If you do not have a bank account we can arrange for the payment to be made to a trusted third party. 

Contact us

If you want to discuss the grants before applying, or need assistance in making the application, please contact helpline@cysticfibrosis.org.uk or call the helpline on 0300 373 1000.

For further details, please see the Welfare Grant Guidelines.


Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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