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Cystic Fibrosis Trust

Health and wellbeing grants

Health and wellbeing grants help purchase goods or services which can improve your health and quality of life.

Typical goods purchased through the grants scheme would include:

  • Exercise equipment
  • Refrigerators  
  • Washing machines
  • Furniture when moving to a new home

Typical services would include:

  • Gym fees

Grants will usually be for around £250 to £350. Please note, we are unable to provide grants for any medical equipment, including nebulisers.

The Trust funds holiday grants for people aged 25 and over to help them live the life they want to, lifting some of the limits of cystic fibrosis. These grants are administered by the Cystic Fibrosis Holiday Fund (CFHF). Please visit their website for more details and to apply for a holiday grant. The CFHF also funds holiday grants for under 25s.

Who can apply

Demand for these grants is high, and we want to make sure that grants are going to the people who need them most.

We would ask people who have enough income, savings or funds to meet these costs not to apply.

In the application we ask about specific reasons why you might not be able to meet these costs yourself. This information will help us to make a fair decision about your application.

Reasons could include:

  • Having a household income less than the Joseph Rowntree Foundation-assessed Minimum Income Standard (we explain this more in the next section).        
  • A reduction in income due to benefits being withdrawn or put on a lower rate following PiP, ESA or other benefits reassessment.
  • A reduction in benefits following assessment as an adult at age 16.
  • Loss of employment or reduction in working hours.  
  • Leaving the family home.
  • Leaving full-time education.

These are just examples, and there may be other reasons that affect you. There is space in the application form for you to tell us about these.

People cannot apply for more than one Health and wellbeing grant per year.

Minimum Income Standard

Like many other charities, we recognise the Minimum Income Standard that has been developed on behalf of the Joseph Rowntree Foundation. The Minimum Income Standard for the UK shows how much money people need, so that they can buy things that members of the public think that everyone in the UK should be able to afford.

You can calculate the minimum your household needs by using the Minimum Income Calculator.

The Calculator asks three simple questions, and takes less than a minute to complete.

Please note: in your application we are NOT asking for any information about your household income or for any evidence.  

How to apply

Please print the health and wellbeing grants1609 Form Health and Wellbeing Grants Sep 2016, complete it and send it to the address below. Alternatively you can download the form and email it to helpline@cysticfibrosis.org.uk.

When applying for these grants please let us know exactly how much the goods or services are going to cost.

You can apply for grants for goods or services that you have already purchased, up to two months before the date of your application. Please note that we cannot guarantee that your application will be successful, and, even if successful, you may receive an award less than the amount you requested.

We will need a supporting statement from a health care professional, such as your specialist centre social worker, clinician or nurse. They will be asked to explain how the grant will benefit you, and if there are any risks to your wellbeing if the grant is not awarded.

If you are not able to get to your specialist centre, please arrange for them to email helpline@cysticfibrosis.org.uk with their supporting statement. They will need to give their name and contact details, as well as your name, date of the application and amount requested, so we can match their statement to your application.

What happens next?

Decisions on these grants are made by an independent panel which meets every two months.

The panel might decide to award your grant request in full or make a payment that is less than the amount you requested. If this is the case you will receive your grant within two weeks of the decision.

Unfortunately, there may not be sufficient resources to meet all the grant applications we receive. If this is the case, your application may be turned down, or deferred to the next panel. You will be written to within a week of the decision if this is the case.

The next grant panel meetings take place on 13 October 2016 (deadline for applications: 6 October) and 13 December 2016 (deadline for application: 6 December). Grant panel meetings will be held in February, April, June, August, October and December.

Payment

Grants can be paid by cheque or BACS transfer to your bank account. A BACS transfer can be processed quicker and is preferred if possible. We aim for payments to be made within a week of the decision.

If you do not have a bank account we can arrange for the payment to be made to a trusted third party. Please call the helpline or grants assistant to discuss.

Contact us

If you want to discuss the grants before applying, or need assistance in making the application, please contact helpline@cysticfibrosis.org.uk or call the helpline on 0300 373 1000.

For further details, please see the Welfare Grant Guidelines.


Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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