Your donation will make a difference:
Cystic Fibrosis Trust

Personal Independence Payment (PIP)

Personal Independence Payment helps with some of the extra costs caused by long-term ill-health or a disability if you’re aged 16 to 64.

PIP is the benefit which has replaced Disability Living Allowance (DLA) for adults for new claims. Everyone on DLA will gradually be asked to claim PIP instead, even if you have an award for ‘life’ or an ‘indefinite’ award.

If you are invited to claim PIP and choose not to, your DLA will still end. 

The rate of benefit is decided after an assessment process and depends on how your condition affects you, not the condition itself.

If you are asked to make a claim for PIP and would like some help with your claim, please call our helpline on 0300 373 1000 or email helpline@cysticfibrosis.org.uk. Our experienced Welfare and Rights Advisor will be able to support you with the process. Alternatively, your cystic fibrosis team may be able to put you in touch with a specialist social worker.

We also want to hear about your experience of claiming PIP so that we can continue to improve the advice we give, and to help us express how we feel the system could be improved.

The claims process involves you writing about your condition in a questionnaire and often includes a face-to-face assessment. It is important to understand the way in which your case will be assessed. We have produced a guide to each of the assessment criteria and the way in which people with cystic fibrosis should describe their disability in relation to them.

Currently, you still have to apply to DLA for children. Read our helpful hints and tips for completing the form in relation to care needs.

When will I be affected?

The change from DLA to PIP only affects you if you're aged 16 to 64. 

Everyone on DLA will receive a letter explaining:

  • What will happen to your DLA
  • How you can claim PIP 

Take a look at DLA is ending - know the facts from the Department for Work & Pensions (DWP) for more information.

I already receive DLA

If you already receive DLA, you don't need to contact the DWP about PIP; you'll get a letter from the DWP soon to tell you:

  • More about PIP
  • When you will be affected

Please seek advice if you are on DLA and your health or circumstances change. 

If you’re on DLA and were 65 or older on 8 April 2013, these changes won’t affect you.

I do not receive DLA and am claiming for the first time

PIP was introduced for new claims in parts of the north of England from 8 April 2013, and nationwide from 10 June 2013. 

To claim PIP if you’re in England, Scotland or Wales

You'll have to phone DWP to make a new claim. They'll then send you a form asking you to describe how your long-term health condition or disability affects you.

DWP - Personal Independence Payment claims
  • Telephone: 0800 917 2222 
  • Textphone: 0800 917 7777 
  • Monday to Friday, 8am to 6pm
The process is different for claims in Northern Ireland.

What you need to do

You will need to apply for PIP when asked (even if you have an indefinite or lifetime DLA award). When you apply, your DLA will continue until the DWP makes a decision about your claim. If you decide not to apply, your DLA will end.

How do I claim PIP?

Your initial claim for PIP will be made by telephone to the DWP. 

In this first call, you will need to provide the DWP with basic information on:

  • Your personal contact details
  • Your health condition and disability
  • Periods spent in hospital or residential care
  • Payment (bank account) details
If you have any communication or contact issues, these can be discussed at this point. 

Contact our helpline if you experience any issues at this stage.

The DWP will make sure you meet the age and residency requirements before issuing a claimant questionnaire.

The claimant questionnaire is titled 'How your disability affects you'. This is your opportunity to describe your life with cystic fibrosis. When filling in this questionnaire it is worth using the assessment criteria guide to help you describe your experience of disability.

You will be assigned a ‘Case Manager’ at the DWP who will oversee the progression of your whole claims process.


Important notes

It is worth bearing in mind at all stages of your claim that this benefit aims to enable you to live an independent life. Being able to demonstrate, with examples, how your condition negatively impacts on your ability to lead an independent life and the extra costs you incur is critical to getting the decision you deserve. Use the assessment criteria guide to help you.

As cystic fibrosis is a condition that can change every day, you should always describe the difficulties you face with everyday tasks when you are not well, as well as when you are managing your care and feeling well.

Importantly, at this stage, when returning your claimant questionnaire, you are invited to include any information you have that will support your claim.

We strongly recommend that you use this opportunity to include supporting statements from the healthcare professionals that manage your care.

What supporting information should I include with my PIP claim?

We believe that the most valuable contribution will be made by those who manage your care most closely, understand your treatment and know how your condition affects your daily life.

You should ask for a supporting statement that describes why you need support and help towards the additional costs you face in living an independent life from at least one of the following:

  • Your cystic fibrosis consultant
  • Your cystic fibrosis nurse
  • Your care centre's social worker
  • Your GP
  • Any other healthcare professionals involved in your care management

You should include this information in the envelope when you return your claimant questionnaire.

We can assist you with a supporting statement that will provide general information on the impact cystic fibrosis can have on an individual's life. We can make this specific to your daily difficulties if you can give us this information. If you would like a letter, please contact the helpline. We will ask you to fill in a care needs form to tell us about your daily treatment routines and how CF affects you personally – please provide as much information as possible. 

Next steps

Once the claimant questionnaire and supporting information has been received by the DWP, it is highly likely that you will be asked to attend a face-to-face consultation and assessment. You will be provided with contact details to ask any questions you may have about the process and to rearrange the assessment day if you need to

Face-to-face consultation

You are encouraged by the DWP to invite someone who can support you to the consultation, if possible. This could be a family member, friend, social worker or anyone you feel can provide support and assistance to you on the day.

The consultation will be conducted by a healthcare professional who will ask you questions about your living circumstances, your health condition and how it affects your daily life. They will review all the evidence gathered against a set of everyday activities to assess the challenges that you face and put a report together so that a case manager can make a decision on entitlement.

Call our helpline for further advice about this process and what you can do to prepare.  

Outcomes and appeals

A case manager at the DWP will assess all evidence, including your claimant questionnaire, supporting evidence and assessment report before making a decision on your entitlement and the level and length of award.


You will be informed of this decision by post. The letter will provide information about the decision and how it has been reached.

In the event of a negative outcome, there will be an opportunity to ask for a reconsideration of the available evidence before entering into the appeals process. You must request this reconsideration within one month of the date of the decision letter.

If you need advice and support throughout a dispute and appeals process, contact our Welfare and Rights Advisor via our helpline.

PIP assessment criteria

Read our guide on how to think and talk about how cystic fibrosis affects you on a daily basis to maximise your opportunity to get a fair assessment.

Find out more

Here to help

Find out how to contact our wonderful helpline staff by telephone and email. They’re here Monday to Friday to answer your questions, help you access support or just to have a chat.

Pick up the phone

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch
Related Posts Plugin for WordPress, Blogger...