We understand that a diagnosis of cystic fibrosis (CF) can be very difficult, and there's a lot for you and your family to think about. We are here to help.
In this short film, a mother of a baby who has just been diagnosed with cystic fibrosis gets some reassurance from other parents who have first hand experience.
If you would like to talk to someone, call our helpline on 0300 373 1000 or send an email and talk to our trained staff, whatever your question or concern.
New parent pack
We have worked with a number of parents of children with CF to produce an information pack for you. This contains a booklet about CF and how some families have found it affected their lives. Through sharing their stories with you, both in the booklet and the film, we hope it may help you cope with the diagnosis and look ahead to your new family life.
To order your pack, please call the helpline on 0300 373 1000 or email firstname.lastname@example.org and include your name, address and your baby’s date of birth, or simply complete the form at the bottom of this page.
You can also download a PDF version and check out a special pack for friends and family.
Meet some of the people who helped make our film and pack.
Read Sarah's diary, which she kept in the weeks after her son Rhys was diagnosed with cystic fibrosis.
If you want to speak to other people who are experiencing a diagnosis of cystic fibrosis, and share tips, support and advice, check out our Forum. You will need to sign up to access the Forum.