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Cystic Fibrosis Trust

New diagnosis

Congratulations on your new arrival!

We understand that a diagnosis of cystic fibrosis (CF) can be very difficult, and there's a lot for you and your family to think about. We are here to help.

 

In this short film, a mother of a baby who has just been diagnosed with cystic fibrosis gets some reassurance from other parents who have first hand experience. 

If you would like to talk to someone, call our helpline on 0300 373 1000 or send an email and talk to our trained staff, whatever your question or concern.

New parent pack

We have worked with a number of parents of children with CF to produce an information pack for you. This contains a booklet about CF and how some families have found it affected their lives. Through sharing their stories with you, both in the booklet and the film, we hope it may help you cope with the diagnosis and look ahead to your new family life.

To order your pack, please call the helpline on 0300 373 1000 or email helpline@cysticfibrosis.org.uk and include your name, address and your baby’s date of birth, or simply complete the form at the bottom of this page.

You can also download a PDF version and check out a special pack for friends and family

Meet some of the people who helped make our film and pack.

Read Sarah's diary, which she kept in the weeks after her son Rhys was diagnosed with cystic fibrosis.

If you want to speak to other people who are experiencing a diagnosis of cystic fibrosis, and share tips, support and advice, check out our Forum. You will need to sign up to access the Forum.

CF Connect

You may find it helpful to speak with other parents who have been through a similar experience. CF Connect can put you in touch with a trained parent volunteer who you can talk to in confidence. Ask our helpline for details.

Find out more


The parents' pack, guide for friends and family, and diary of a parent are excellent. I feel they would be a tremendous support for parents of babies newly diagnosed with cystic fibrosis, as they give a very honest and positive view of what is in store.

Reviewer at the British Medical  Association Patient Information Awards

New parent pack form

Title

Title

Title
*
First name

First name

*
Last name

Last name

*
Address line 1

Address line 1

*
Address line 2

Address line 2

Town/city

Town/city

*
Post code

Post code

*
Email

Email

*
Telephone number

Telephone number

Relationship to child

Relationship to child

Child's forename

Child's forename

Child's surname

Child's surname

Date of birth (DD/MM/YYYY)
Date of birth (DD/MM/YYYY)
I would like to hear about local support events

I would like to hear about local support events

I would like to hear about fundraising activities
I would like to hear about fundraising activities
I would like to opt-out of any communication
I would like to opt-out of any communication

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

Here to help

Find out how to contact our wonderful helpline staff by telephone and email. They’re here Monday to Friday to answer your questions, help you access support or just to have a chat.

Pick up the phone