Your donation will make a difference:
Cystic Fibrosis Trust

Work

More people with cystic fibrosis (CF) are in employment than ever before, but there are some important considerations to take into account when you're looking for a job.

We believe that you should be able to live the life you want to live, including your choice of career.

Applying for a job

When you apply for a job there are a few things to consider, including:

  • Is the working environment suitable for you and your symptoms? Is there a canteen, rest-room or first aid room?
  • Are there flexible working arrangements that might make it easier to attend CF clinic appointments, etc?
  • Do they have a Permanent Health Insurance plan? If you become too ill to work, health insurance may provide you with an income. Having CF doesn’t necessarily mean you won’t qualify; it depends on the company.

As far as possible, CF should not be allowed to limit your choices; focus on what you can do, not what you can't.

When should you tell an employer you have cystic fibrosis?

The appropriate stage for an employer to ask health questions will often be after a job offer is made, but before you start. Talk to your employer/line manager about how CF may affect your work (PDF 105KB). Explain how the condition may affect you in the particular work environment and always emphasise your abilities.

It is best to be straightforward (though consider seeking specialist advice if you think questions are inappropriate or unnecessary). If you are not asked about your health, the information you decide to volunteer is a very individual choice, as is identifying the right time to negotiate adjustments.

If you do not make an employer aware that you have a disability, you may lose protection, which would otherwise be available to you under discrimination law. The Equality Act 2010 aims to combat discrimination against people with disabilities. 

If you need more information, or want to share tips, support and advice, please contact us.

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

Campaigning hard

We are here to shout loud for better care and services for people with cystic fibrosis, but to really be heard, we need you to join us!

Raise your voice

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch