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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.

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The effects of the COVID-19 pandemic on people living with rare diseases: a doctor’s view

For people living with rare diseases like cystic fibrosis (CF), the impact of the COVID-19 pandemic has been far reaching, with both positive and negative outcomes. Dr Jamie Duckers, Consultant in CF and Respiratory Medicine at Cardiff and Vale University Health Board, talks about how the CF community has been affected by the pandemic.

Celebrating an important anniversary in Pseudomonas aeruginosa research

To mark World Antimicrobial resistance Awareness Week, we reflect on a research milestone that has helped researchers investigate new treatments for a serious CF lung infection.

Did you see us on The One Show?

Ryan has cystic fibrosis (CF) and helps run gaming nights for children with CF as part of our Children in Need-funded youth programme. He was recently surprised by The One Show’s new fundraising challenge for BBC Children in Need – the Surprise Squad – to celebrate all of his hard work for our charity.

Top tips to help you manage CF-related diabetes

Developing CF-related diabetes (CFRD) is one of the most common complications of cystic fibrosis. In fact, one in three adults with CF in the UK is currently living with the condition. Following World Diabetes Day last week, we chatted to specialist CF dietitian Julie Al-Siaidi about the challenges of living with and treating CFRD, and we hear from the CF community about your top tips for managing it. Thank you to everybody who shared their advice!

Five highlights from the North American Cystic Fibrosis Conference (NACFC)

Last week the North American Cystic Fibrosis Conference (NACFC) took place online. It is the biggest CF conference in the world, covering everything from better ways to manage symptoms and treatments for CF, to updates on the treatment pipeline and the latest in lab research to develop new treatments. Belinda Cupid, Senior Impact Adviser at the Trust, shares her top five highlights from the Conference. 

Diwali and CF: Hetal’s story

As millions of people all over the world celebrate Diwali, Hetal tells us why the festival of lights is her favourite holiday

What Black History Month means to me: Etienne's story

10,000 Black Interns programme participant Etienne discusses his time spent working at Cystic Fibrosis Trust - and why programmes to support Black representation are so important

The effects of getting older with CF

With the great strides being taken in treatment for cystic fibrosis, we’re looking at the impact of growing older, so that everyone with CF is able to live a long and full life.

Life with CF test 1

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