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Cystic Fibrosis Trust
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News

The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.

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12/08/2019

Decision means tragic wait for life-saving drugs continues

The Scottish Medicines Consortium (SMC) have not been able to recommend the routine use of cystic fibrosis drugs Orkambi and Symkevi by NHS Scotland...
17/06/2019

Advice Space - when a little understanding goes a long way

In Northern Ireland a scheme co-funded by the Cystic Fibrosis Trust has trained advisors at Advice Space (formerly Citizens Advice Belfast) to...
David Ramsden, Chief Executive - 11/06/2019

David Ramsden discusses Monday’s debate

Monday’s Parliamentary debate in the House of Commons saw 17 MPs share the personal stories of people with cystic fibrosis (CF) across the UK,...
11/04/2019

PACS Tier 2: Access to Orkambi and Symkevi in Scotland

In late December 2018, NHS Scotland and Vertex Pharmaceuticals reached a deal on access to precision medicines through a system called PACS Tier...
05/03/2019

A complex array of drugs lie in wait for the future of cystic fibrosis drug treatment

The fight continues to gain access to the cystic fibrosis drugs Orkambi and Symkevi, as well as other treatments in the pipeline. Here we take...
28/01/2019

Parliament calls for your views in the access to medicines inquiry

Find out how you can take part in the Health and Social Care Committee’s inquiry into the availability of Orkambi and other precision medicines...
David Ramsden, Chief Executive, Cystic Fibrosis Trust - 30/11/2018

David Ramsden comments on medicines inquiry submission deadline

Read an update on the Health and Social Care Committee Inquiry from the Cystic Fibrosis Trust’s Chief Executive, David Ramsden, and find out...
Nick Medhurst, Head of Policy and Public Affairs - 23/11/2018

Marking three years since Orkambi

This week saw the third anniversary of the precision medicine Orkambi being licensed for use in the UK, while arguments over funding mean people...

1-8 of 74 results for all news