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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
1-8 of 56 results for all news
Jeremy Hunt, Secretary of State for Health and Social Care today called on drug manufacturer Vertex to be transparent on its pricing for the...
At the end of a busy week of activity in the fight to stop the clock on cystic fibrosis, and on the eve of another, our Chief Executive, David...
Grace Paget, Public Affairs Officer at the Cystic Fibrosis Trust, gives an update on yesterday’s precision medicines debate in Holyrood, and...
A round up of news from the campaign for access to medicines, including MSPs meeting in Scotland, negotiations in England, a potential debate...
Doctors group write to Vertex Pharmaceuticals, politicians and decision-makers offering support in making breakthrough in negotiations. *** Updated...
This week Vertex will meet with NHS England on Wednesday 25 April to discuss further negotiations around access to precision medicine Orkambi...
Yesterday’s debate in Westminster Hall on access to Orkambi for people with cystic fibrosis (CF) demonstrated once again the incredible force...
Ahead of Monday’s debate in Parliament on access to Orkambi, Paul Scully MP, Kate Anderson from the petitions committee and Alasdair Mackenzie,...