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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
1-8 of 61 results for all news
Yesterday, Trust representatives met with the Pharmacy and Medicines Division of Scottish Government in Edinburgh to discuss Orkambi and new...
Read the letter from David Ramsden, Chief Executive at the Cystic Fibrosis Trust, to Matt Hancock MP, the new Secretary of State for Health and...
Do you have a child with cystic fibrosis (CF) and want to find out more about their rights at school? We asked a legal expert to answer a few...
It has been a tough week for the cystic fibrosis community. There has been a flurry of intense activity, followed by numerous letters and press...
New precision medicine tezacaftor-ivacaftor has completed clinical trials, but before any decisions on its use in the NHS are made, it must be...
Jeremy Hunt, Secretary of State for Health and Social Care today called on drug manufacturer Vertex to be transparent on its pricing for the...
At the end of a busy week of activity in the fight to stop the clock on cystic fibrosis, and on the eve of another, our Chief Executive, David...
Grace Paget, Public Affairs Officer at the Cystic Fibrosis Trust, gives an update on yesterday’s precision medicines debate in Holyrood, and...