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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
81-88 of 94 results for all news
Race against time for father of two being denied compassionate use of Orkambi.
Nightmare benefits encounter reveals misunderstanding around respiratory tests
As NICE deliberates final decision, Trust’s proposal gains hearing
On Thursday 28 April, NICE met for the final time to discuss feedback received on its interim recommendation not to fund the transformational...
We sit down with Sangeeta Enright, Welfare and Rights Advisor, to talk about joining the Cystic Fibrosis Trust, helping people navigate the benefits...
Powerful testimony and compelling evidence presented on Ivacaftor and Orkambi.
As the National Institute for Health and Care Excellence (NICE) opts not to recommend the gene-specific medicine Orkambi to NHS England, while...
Lynsey Beswick, Public Affairs Officer at the Cystic Fibrosis Trust, will share her views on Orkambi® from a patient perspective with the Scottish...