We’ve just opened applications for this year’s summer studentship scheme, which provides funding for academic researchers to host an undergraduate student in their research group for 6–8 weeks. For the Trust, it’s an opportunity to encourage science students to consider doing cystic fibrosis (CF) research during their careers; for the students, it is a chance to get a feel for what it’s like to do medical research. Robbie Bain is in his fourth year of his medical degree at Newcastle University. We talked to him about his experience of doing a summer studentship last year, and how his plans changed during the COVID-19 pandemic.
CF STORM is a ground-breaking trial to find out if people receiving Kaftrio can safely start to reduce the number of treatments they have to manage as part of their daily healthcare routine. Here we explain how the Trust has been involved from the outset and how we continue to support the development of CF STORM by involving people with cystic fibrosis (CF) and their families.
To commemorate Rare Disease Day, we are sharing Rachael’s story, a passionate advocate for rare diseases who ran the virtual London Marathon in 2020. Here, she tells us how a promise to a friend with cystic fibrosis (CF) inspired her to join Team CF.
With many people feeling isolated and lonely due to lockdown, talking to friends and family is now more important than ever. Join us this FeBREWary and host a virtual tea party as a way to stay connected while also supporting a fantastic cause. We spoke to people who have already taken part in a FeBREWary event, to find out why they got involved and how the experience has helped bring them closer to the cystic fibrosis (CF) community.
With almost a year gone by since the first national lockdown, things might feel a little challenging right now. We hope that sharing stories from the cystic fibrosis (CF) community will remind you that you are not alone. Here, Luke reflects on the 2020 he and his family hoped to have, how he balanced resilience with feelings of isolation and loneliness, and why he remains hopeful for the future.
Today is International Day of Women and Girls in Science – a day to celebrate the achievements of women in science and shine a light on role models that women and girls can aspire to. We caught up with Dr Gwyneth Davies, researcher and paediatrician at UCL Great Ormond Street Institute of Child Health, on how she started out in cystic fibrosis (CF) research, her current work in designing clinical trials and her advice to girls and women thinking about a career in science.
Our latest CF LIVE event on physiotherapy and exercise generated some great discussions on how people are staying active through lockdown. Take a look at some of the brilliant suggestions made by our panel of experts and the cystic fibrosis (CF) community on what support is available to warm you up through these winter months!