The roll out of the new coronavirus (COVID-19) vaccines brings hope for the cystic fibrosis (CF) community, and the wider world. However, it's understandable to have some questions and reservations. Health worker Emma, aged 22, is one of the first people with CF in the UK to get her vaccine, and shares her story of why she recommends getting it.
When Kate’s youngest son was diagnosed with CF, she found a sense of empowerment through her fundraising, making her own amazing contribution to Team CF and the fight for a life unlimited. As the new calendar of challenge and community events gets underway in 2021, Kate tells us what Team CF means to her – and why she’s setting her sights on Snowdon.
We would like to pay tribute to two former Board members who were both dedicated to the CF community and the fight to beat cystic fibrosis. Sir Robert Johnson QC was a co-founder of the Cystic Fibrosis Trust, and Peter Levy OBE succeeded his father Joseph, himself a co-founder of the Trust, as Chair of the board in the 1980s.
It is with much sadness that we acknowledge the loss of our dear friend and esteemed colleague Lynne Gumery O’Grady, who was a vital and much-loved member of the Trust’s clinical care team for many years. Lynne passed away surrounded by her family on 5 December 2020. We are grateful to some of Lynne’s friends and former colleagues who put together this tribute.
Recently we asked you to share your top tips for getting through the wintertime when you live with cystic fibrosis. Here, our Community Manager Emma shares some of your suggestions and a few of her own of how she has managed her cystic fibrosis (CF) during colder months and what things have helped her get through this time in the pandemic.
A report published by the Trust today highlights the vital potential of gene editing for new treatments that tackle the cause of cystic fibrosis (CF) for everyone with the condition; and co-funding and collaboration could hold the key.
A global study supported by the Cystic Fibrosis Trust, as part of the Global Registry Harmonization Group, made up of CF specialists from around the world and including the Cystic Fibrosis Foundation has revealed that children with cystic fibrosis (CF) who do not have pre-existing severe lung damage experience mild or asymptomatic illness when infected with coronavirus (COVID-19).
This year will bring a different festive period for many, and this can be made harder if you’re experiencing money worries. Here, Nicky, the Trust’s Welfare Officer, shares 12 useful tips to support you to manage your finances at this time of year. They include information about the changes in benefit payment dates, seasonal information that may help you to plan your budget, and how the Trust can help through financial grants and our Helpline.