The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
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Fight goes on after decision against life-changing drug.
Cystic fibrosis community in Wales still waiting for access to ivacaftor (Kalydeco®) despite Welsh Government’s agreement to provide the life-changing...
Experts call for funding and reform to commissioning before it’s too late.
Lend your voice to call for funding solution for Kalydeco and Orkambi.
Race against time for father of two being denied compassionate use of Orkambi.
Nightmare benefits encounter reveals misunderstanding around respiratory tests
As NICE deliberates final decision, Trust’s proposal gains hearing
We sit down with Sangeeta Enright, Welfare and Rights Advisor, to talk about joining the Cystic Fibrosis Trust, helping people navigate the benefits...