The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
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Powerful testimony and compelling evidence presented on Ivacaftor and Orkambi.
As the National Institute for Health and Care Excellence (NICE) opts not to recommend the gene-specific medicine Orkambi to NHS England, while...
Lynsey Beswick, Public Affairs Officer at the Cystic Fibrosis Trust, will share her views on Orkambi® from a patient perspective with the Scottish...
Petition increases pressure for an agreement to be reached on precision medicines.
The assessment of Orkambi® continues today as The National Institute for Health and Care Excellence (NICE) takes evidence from people with cystic...
Kalydeco approved for three people with cystic fibrosis in Wales.
MPs debate access to transformative medicines for people with cystic fibrosis.
Your stories paint the bigger picture on precision medicines as drug receives European approval.