We use cookies to ensure that we give you the best experience on our website. By continuing to use our site, you are agreeing to our use of cookies. You can change your cookie settings at any time if you want. Find out more in our privacy and cookies policy.
The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
41-48 of 56 results for all news
Cystic fibrosis community in Wales still waiting for access to ivacaftor (Kalydeco®) despite Welsh Government’s agreement to provide the life-changing...
Experts call for funding and reform to commissioning before it’s too late.
Lend your voice to call for funding solution for Kalydeco and Orkambi.
Race against time for father of two being denied compassionate use of Orkambi.
Nightmare benefits encounter reveals misunderstanding around respiratory tests
As NICE deliberates final decision, Trust’s proposal gains hearing
We sit down with Sangeeta Enright, Welfare and Rights Advisor, to talk about joining the Cystic Fibrosis Trust, helping people navigate the benefits...
Powerful testimony and compelling evidence presented on Ivacaftor and Orkambi.