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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
57-64 of 94 results for all news
The Prime Minister’s Party Conference speech was splashed across the news for reasons Theresa May would rather forget but at Trust HQ, we were...
Following last week's update from Vertex in response to a direct request from the Trust, Lynsey Beswick, Public Affairs Manager for the Trust,...
Following a request from the Cystic Fibrosis Trust, Orkambi manufacturer Vertex has issued a statement on proposals to increase access to Orkambi...
At the end of his first year on the transplant waiting list, Charles Michael Duke produced a list of some of the things he had learned since...
The cystic fibrosis (CF) community joined together at protests across the UK and online yesterday to call for access to Orkambi for those who...
In the lead-up to our day of action for Orkambi on 26 June, we spoke to Maisie, who has been taking the drug on compassionate grounds for almost...
This year marks the 10th anniversary of cystic fibrosis (CF) becoming part of the Guthrie heelprick test for newborn babies across the UK, as...
Urgent National Lung Allocation System to bring fairer access to life-saving transplants in the UK.