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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.

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Financial support over the festive season

Here are some useful tips for managing financial pressures around the festive session from Nicky, the Trust’s Welfare Officer. They include information about the changes in benefit payment dates, applying for financial help from your energy supplier, seasonal information that may help you to plan your budget, and how the Trust can help through financial grants and our Helpline. 

The other side of the window - Sarah’s visit to labs researching CF lung infections

This week is World Antimicrobial Resistance Awareness Week; it’s an opportunity to tell you about exciting research to develop better ways to treat CF lung infections. Here, we report on Sarah’s visit to the labs of Trust-funded researcher Professor Jo Fothergill.

Jack’s story: Being a professional dancer with CF

We spoke to dancer and choreographer Jack, who performed on America and Britain’s Got Talent, who has now turned his attention to ‘Just Believe’, a company that raises awareness of CF through dance. Jack speaks about his diagnosis, how he became a dancer and his performance, raising awareness of CF.

Reflections on the MHRA announcement and NICE process

Today, our Chief Executive reflects on the past week of cystic fibrosis news: from NICE’s draft recommendations on modulator therapies Orkambi, Symkevi and Kaftrio, to yesterday’s announcement that children aged 2–5 years old have been approved to use Kaftrio.  

Kaftrio now approved for 2–5-year-olds

The UK medicines regulator, the MHRA, has today extended the licence of the CF drug – Kaftrio (ivacaftor, tezacaftor, elexacaftor) – saying it is safe and effective for eligible children over 2 years old.  

UK Health Security Agency report reveals a post-pandemic bounce back in antibiotic resistant infections

The UK Health Security Agency has shared the results of its ESPAUR report, highlighting the increase in antimicrobial resistance.

World Diabetes Day

Today is World Diabetes Day, so it’s an opportunity to raise awareness of CF diabetes, what we know about it, and how it is managed.

Mark Blois, Partner and National Head of Education at Browne Jacobson, makes Disability Power 100 for second time

Mark Blois tells us about being included in the Disability Power 100 list 2023, in the Politics and Law category.

Life with CF test 1

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