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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
9-16 of 368 results for all news
Following last week’s rally, Carlie, a long-time campaigner with cystic fibrosis (CF), spoke to Dr Jeffery Leiden, Chief Executive of Vertex...
UK-wide patient experience survey launched in 24 paediatric centres.
Analysis of UK CF Registry data found that people with cystic fibrosis (CF) taking ivacaftor (brand name Kalydeco) appear to have fewer lung...
Long-term data trends published in the UK Cystic Fibrosis Registry 2018 data report present a mixed picture overall, with drops in the prevalence...
The grants, totalling just under £33,000, help people living with cystic fibrosis with the additional costs of studying that may come as a result...
Today researchers based at Imperial College London and the charity Medical Detection Dogs have published their ‘proof of concept’ study that...
The Scottish Medicines Consortium (SMC) have not been able to recommend the routine use of cystic fibrosis drugs Orkambi and Symkevi by NHS Scotland...
The UK CF Registry, a secure centralised database, sponsored and managed by the Cystic Fibrosis Trust, which records health data on consenting...