News

03/11/2023

Latest update on the NICE appraisal of Orkambi, Symkevi and Kaftrio

Cystic Fibrosis Trust responds to NICE committee’s draft recommendations on modulator therapies Orkambi, Symkevi and Kaftrio

02/11/2023

Lucy and the 65 Roses EP

We sat down with Lucy, a musician and songwriter with cystic fibrosis to hear all about her life with CF, her brand-new EP ‘65 Roses’ her launch event coming up this month.

02/11/2023

UK Cystic Fibrosis Registry receives grant to improve transparency of health data

The Registry is one of 19 projects to be awarded funding by the initiative

01/11/2023

What’s on your mind?

Our Helpline Manager, Matthew, answers some of your questions about life with cystic fibrosis.

31/10/2023

Diwali at the Trust: How our staff are celebrating this year

With your support this festive period, we can continue to fund research into life-changing treatments that work for everyone with cystic fibrosis (CF). As millions of people all over the world celebrate Diwali, some of our staff share how they are celebrating Diwali this year.

31/10/2023

“We celebrate Diwali with a lot of love – and diyas and rangolis!” We speak with Swapnali, mum to two-year-old Aslesha, who has CF.

Swapnali tells us about Aslesha’s diagnosis, life with CF, and how they celebrate Diwali.

30/10/2023

Navigating CF as a teenager: Tess's story

Juggling CF alongside her schoolwork and growing up has been difficult for Tess, 17, but it hasn’t stopped her from having many ambitions for her future

25/10/2023

“I hope Jacob has a bright, long, fulfilled life”: Mum Morag shares Jacob’s story

With your support this festive period, we can continue to fund research into life-changing treatments that work for everyone with cystic fibrosis (CF). Together, we can ensure children with CF, like two-year-old Jacob, can look forward to a brighter future.

Your donation will make a difference:

News

Our newsletter

Share this page

Your donation will make a difference: