The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.
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Legacy Giving award reflects Trust’s relationship with supporters and commitment to innovation.
NICE starts gathering information on new cystic fibrosis (CF) drug for ‘nonsense’ mutations.
Nightmare benefits encounter reveals misunderstanding around respiratory tests
As NICE deliberates final decision, Trust’s proposal gains hearing
On Thursday 28 April, NICE met for the final time to discuss feedback received on its interim recommendation not to fund the transformational...
Trust’s new resource helps people with cystic fibrosis (CF) and their partners make informed decisions around fertility and parenthood.
Community voice prompts manufacturers to act on discontinuation of Creon 40,000 and poor supply of Creon 25,000.
Trust fights decision to diminish voice of CF community in face of NHS England's proposals.