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The latest news and research from the world of cystic fibrosis, keeping you up-to-date and in the know.

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'Supporting the wellbeing of new parents with cystic fibrosis’ pilot launched

Home-Start Glasgow South and Home-Start Glasgow North and North Lanarkshire are embarking on an exciting new joint project with Home-Start UK and Cystic Fibrosis Trust.

Get support from other parents with CF Connect

Our peer support service connects you with a trained parent volunteer—so you can get help and advice from someone who knows just what you’re going through

Becoming Ironman

Jamie Fox, from Hawkinge in Kent, was diagnosed with cystic fibrosis at six months old and diagnosed with CF diabetes at 20. He has always been one for taking on challenges that scare him, but his latest challenge has been his biggest yet.

Government launch public consultation to tackle youth vaping

People of all ages have eight weeks to share experiences and submit views to help shape future government policy on vaping and smoking

“I lived in a house with sewage, flies, maggots, fleas and dead rats”: people with cystic fibrosis fear the worst for winter ahead

New analysis from Cystic Fibrosis Trust, published today, reveals that many people with cystic fibrosis (CF) are struggling to afford basic daily essentials such as food and energy bills, with more people than ever needing financial assistance. This is taking a huge toll on their mental health, with 9 in 10 worried about the future. 

“Be proud of your CF – don’t try to hide it.”

Kieron Smith, 26, was the face of our latest  #CFTruths awareness campaign, ‘You don’t see CF,’ that launched across the UK in April this year. As part of this, his face appeared on billboards and adverts to raise awareness of the realities of cystic fibrosis.

Knowing me, knowing you

Dr Tim Lee is the lead consultant for the Leeds Children's Cystic Fibrosis Centre. In the latest edition of CF Life, we caught up with him to learn more about how he started his career in CF, his interest in genetic therapies and his useful barbeque tip! 

Professor N. Simmonds -

Key findings from the 2022 UK CF Registry report

Improvements in lung function, reduced numbers of IVs and 140 women with CF having babies are just some of the highlights from this year’s Registry data report

Life with CF test 1

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