Your donation will make a difference:
Cystic Fibrosis Trust
  • Home
  • /
  • Privacy Policy

Privacy Policy

At the Cystic Fibrosis Trust we are committed to protecting your privacy. All information we hold concerning you as an individual will be held and processed by the Cystic Fibrosis Trust strictly in accordance with the provisions of the Data Protection Act 1998.

Only data which has been voluntarily provided will be held and such data will only be used by the Cystic Fibrosis Trust to administer our relationship with you in connection with our charitable activities, aims and related purposes. We will not, without your consent, supply your name and address to any third party except where (1) such transfer is a necessary part of the activities that we undertake, or (2) we are required to do so by law.

If we are required to pass your information to a 3rd party as part of the activities we undertake – for example delivery of t-shirts for an event or printing of materials – we will require the supplier to implement adequate controls  to protect your information consistent with the requirements of the Data Protection Act.

If you have indicated that you are interested in receiving regular information about the Trust's services and activities, we will send you communications by post or electronically. In addition, we may send you direct mail that we feel may be of interest to you.

The nature of Trust's work often requires us to collect the information of persons under the age of 16 to facilitate either our support objectives or because they wish to take part in an event organised by the Cystic Fibrosis Trust. Any person under the age of 16 who wishes to take part in such an event must obtain consent in the form of a signature from their parent/guardian on the registration document.

The Cystic Fibrosis Trust does not send marketing materials to anyone under the age of 16. However, in the case of events, we may occasionally send specifically targeted information about events to those of the appropriate age. If you do not wish your child's details to be used in this way or have any questions, please contact or call 020 3795 2177.

We do not sell or rent user information to anyone. We may, from time to time, use our publications, and their inserts, to bring to your attention products/services from our partners that we feel may be of interest to you including the range of products available from our trading company CF Merchandising Ltd.

If you use our website and are asked for personal information at any point, you are only sharing that information with the Cystic Fibrosis Trust alone, unless otherwise stated. For example, when you are using our secure online donation pages you are going through our partner company Justgiving Foundation and the information you give, such as your credit card number and contact information, is provided so that the transaction can take place.

The Trust's website, like many websites, uses cookies in order to provide a more personalized web service. A cookie is a text-only string of information that we pass to your computer's hard disk through your web browser so that our website can remember you. Cookies cannot be used by themselves to identify you. A cookie will typically contain the name of the domain from which the cookie has come, the "lifetime" of the cookie, and a value, which is usually a randomly generated unique number. In addition to "session cookies" which do not remain active after you leave our site, our "Meeting Point" forum uses cookies which store information between your visits to facilitate logging-on to the forum again. You can refuse cookies but you may not be able to use all the interactive features of our website. For more information about cookies, please see

The accuracy of your information is important to us. If you change your address or believe any of the other information we hold concerning you is out of date, please advise us at Supporter Care or write to the Cystic Fibrosis Trust, One Aldgate, Second floor, London EC3N 1RE.

Consent and contact preferences

If you wish to withdraw or amend the consent we hold on record for you please call 020 3795 2177 or email  You can also register on our website and amend your contact preferences on this page

As an individual, you have a right under the Data Protection Act 1998 to obtain information from us, including a description of the data that we hold on you. For more information about this please contact the Data Protection Compliance Officer, Cystic Fibrosis Trust, One Aldgate, Second floor, London EC3N 1RE.


All information contained on this site is intended for general purposes only. It is not a substitute for professional medical advice or a medical examination. Always seek the advice of your consultant, GP, or other qualified health professional before starting any new treatment. Medical information changes rapidly and while the Cystic Fibrosis Trust make efforts to update the content on the site, some information may be out of date. Remember to always seek the opinion of a medical doctor.

This website contains links to third party websites for which the Cystic Fibrosis Trust is not responsible, nor do we necessarily endorse the content expressed within them. We cannot guarantee that these links will work all of the time and we have no control over the availability of linked pages. Nor does it imply that the Cystic Fibrosis Trust recommends or endorses a particular company.


We take every measure available to protect the confidentiality of our users. Your enquiry may appear on the site so the answers can help other people as well. In this eventuality any names or personal details will be changed to maintain confidentiality. Please remember that your computer stores copies of outgoing mail. To keep your message confidential from others who may use your computer delete the copy in your sent items folder and check that our address has not been stored in the address box on your computer. If you do not want to use your usual email address for the purposes of this query, you could choose a free web based email address such as Hotmail, Gmail or Yahoo.

Terms and conditions

View and download PDFs of terms and conditions and other policies for campaigns, competitions and offers.


(1) One-Off Donations

We will use your donation at our discretion but within our stated charitable objectives.
One-Off Donations through the Website are to be made by payment card.
Once you confirm to us through the Website that you wish to proceed with your donation your transaction will be processed through our payment services provider, WorldPay. By confirming that you wish to proceed with your donation you authorise Worldpay to request funds from your credit or debit card provider. Worldpay will only process your donation in pounds sterling.

(2) Gift aid

When you donate to us through our Website and confirm that you are a UK taxpayer in accordance with the requirements of the Gift Aid scheme, we can reclaim Gift Aid. It is your responsibility to ascertain whether you qualify for Gift Aid entitlement. If you have any doubts about your entitlement for Gift Aid we recommend you consult your own advisors or HMRC about any accounting, taxation or financial consequences of making a donation that may affect you. Further information on gift aid can be found at

(3) Unauthorised card use

If you become aware of fraudulent use of your card, or if it is lost or stolen, you must notify your card provider.

(4) Information from you

Before we can process a donation you must provide us with (i) your name, address and email address; and (ii) details of the credit or debit card that you wish to use to fund the donation. We will use this information to process your donation. It is your responsibility to ensure you have provided us with the correct information.
When you submit your payment details, these details will be transferred to our payment provider, Worldpay, and your payment data will be collected and processed securely by them. You should make sure that you are aware of Worldpay's terms and conditions, which are different from our own, to ensure that you are comfortable with how they will process your personal data before you make a donation.

We won't share your personal details with any other third party other than is set out in our Privacy Policy. Our Privacy Policy forms part of these Donation Payment Terms and Conditions and by agreeing to these Terms and Conditions you are also agreeing to the way we use and protect your personal information in line with our Privacy Policy.

(5) Refund policy

If you make an error in your donation please contact us either by email, by phone at 020 3795 2177 or by post at Cystic Fibrosis Trust, One Aldgate, Second floor, London EC3N 1RE within 14 days and a full refund will be made to you.

(6) Direct Debits

These Donation Payment Terms and Conditions will only apply to successive donations made through the Website where you have set up a Direct Debit. When you set up a Direct Debit you will be scheduling a series of donations to be made on the day of the month that you choose for the period of time you selected or until further notice. You agree that these Terms and Conditions will apply to each of the donations in that series.

To cancel your Direct Debit please contact us at Alternatively directions on how to cancel your regular donation online via WorldPay can be found here:

(7) General

We reserve the right to amend these Donation Payment Terms and Conditions at any time.
These Donation Payment Terms and Conditions are governed by English law and are subject to the exclusive jurisdiction of the English courts.

Cystic Fibrosis Trust
Registered Office: One Aldgate, Second floor, London EC3N 1RE
CF Merchandising Ltd
VAT No. 205326206


The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch