Cystic Fibrosis Trust Homepage

Physically Well

Together, we can live without the physical challenges of cystic fibrosis.

Mentally Well

Together, we can manage the mental pressures of cystic fibrosis.

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Together, we can lead the life we want as part of a connected community.

People with CF sharing their story for 60th anniversary

Cystic Fibrosis Trust: Since 1964

For 60 years, we’ve overcome challenges and celebrated breakthroughs. Always learning and moving forward. And we won't stop until CF does.

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NICE modulator appraisal

NICE is currently running a formal appraisal process on the cost-effectiveness of Kaftrio, Orkambi and Symkevi. Find out more here

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Latest news and blogs

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News - 15/04/2024

COVID-19 spring boosters announced for spring

The UK Health Security Agency (UKHSA) have announced that from today, 15 April, those most at risk from developing severe COVID-19 will be able to book their vaccine booster.

Blog - 15/04/2024

“I never thought running a marathon would be possible”: Nell’s London Marathon story

With the countdown to the London Marathon well and truly on, we spoke to our Team CF runner Nell, 22, to find out how her training is going, her motivations for taking part and why she’s determined to not let cystic fibrosis (CF) hold her back.

News - 11/04/2024

Emily’s Entourage reveals the results of their Final 10% Survey

Emily’s Entourage - a US-based non-profit organisation focused on research and drug development for rare cystic fibrosis mutations - latest survey findings show that those not benefitting from modulators continue to live with a substantial treatment burden, and this is impacting their quality of life.