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Cystic Fibrosis Trust

Head of Information and Support (maternity cover)

Aldgate, London (or home-based)

9-12 months

Part-time (3/4 days per week)

£47,500 (pro rata)

The Cystic Fibrosis Trust is recruiting a Head of Information and Support for a period of up to one year.

Cystic fibrosis (CF) is a life-limiting condition affecting over 10,000 people in the UK. It causes the lungs and digestive system to become clogged with thick, sticky mucus, which over time causes permanent damage to the organs. People with CF must undergo a gruelling daily treatment regime, and the condition can impact on all areas of life.

The Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with CF and those who care for them. We invest in cutting-edge research, drive up standards of clinical care, offer information and support for everyone affected by CF, and campaign hard on the issues that matter.

Working within the Impact department, the postholder will lead the Information and Support Team to develop and deliver high-quality information and support services and empower those with the condition to live their lives as fully as possible.

The postholder will have overall responsibility for the Trust’s information and support services, including:

  • A library of over 50 publications for people affected by CF and clinicians
  • A telephone and email helpline
  • A welfare grants programme
  • Benefits and welfare advice
  • A peer support service
  • The Trust’s youth programme, including overseeing a major new initiative to deliver online courses to young people with cystic fibrosis

The postholder must have substantial experience of developing and implementing information and support services to meet clearly defined needs, leading teams to effectively deliver these services, and evaluating and demonstrating impact.

Knowledge of best practice in the information and advice sectors, experience of involving service users in service design, and the ability to respond in an agile manner to issues that could impact people affected by CF will be key to the success of this role.

Experience of developing and delivering services for young people would be a significant asset.

Benefits include a flexible working policy.

If this is for you we would love to hear from you. Take a look at the full job description, complete the application form and equal opportunities form, and send your CV and a covering letter detailing your relevant experience to The equal opportunities form will be separated from your application form prior to the selection process. The information you provide will be treated as sensitive data under the Data Protection Act 1998. Your assistance is appreciated.

Closing date: Wednesday 5 April 2017


The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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More information

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