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Cystic Fibrosis Trust

Head of IT

Circa £50,000 - £55,000 plus benefits

Based in Central London 

The Cystic Fibrosis Trust is the only UK-wide charity making a daily difference to the lives of people with cystic fibrosis, and those who care for them. We invest in cutting-edge research, drive up standards of clinical care, offer support for everyone affected by cystic fibrosis, and campaign hard on the issue that matter.

Cystic fibrosis is chronically misunderstood, kills thousands worldwide and is carried unknowingly in the genes of millions. We’re here to beat it.

Putting people with cystic fibrosis at the centre of everything we do is key to helping us beat the condition for good, and doing this is a challenge that you’ll relish.

Reporting to the Director of Finance and Resources, and with overall responsibility for leading and developing the ICT function, the role will be accountable for operational IT support, ensuring projects are delivered on time and budget and providing advice and support to the Digital and Cystic Fibrosis Registry teams.

The Trust have completely modernized IT over the past three years and are now using Office 365 and Microsoft Azure throughout the organisation. The successful applicant will need to maintain the existing excellent service levels and build on the capabilities provided by the new infrastructure.  Specific programmes of work you will be responsible for include:

  • Enhancing our reporting and data analytics building on the pilots that have been completed with Power BI and Azure.
  • Agreeing CRM strategy for the next 5 years with senior business leaders.
  • Provide organisational leadership for the adoption of GDPR and prepare the organisation for ISO27001 certification.
  • Work with Fundraising and Engagement colleagues to develop our digital marketing capabilities.
  • Delivering the IT solutions required to support our partnership programs with CF clinics.

The IT team is a small one and the successful application will need to demonstrate the technical ability to be a “hands-on” leader who can assist the team on both day to day activities and projects.

As this is a pivotal role within the Trust we will be screening applications and inviting to early interview.

If this is for you we would love to hear from you. Take a look at the full job description, complete the application form and equal opportunities form, and send your CV and a covering letter detailing your relevant experience to The equal opportunities form will be separated from your application form prior to the selection process. The information you provide will be treated as sensitive data under the Data Protection Act 1998. Your assistance is appreciated.

Closing date for completed application will be 31 March 2017


The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

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