Your donation will make a difference:
Cystic Fibrosis Trust

UK CF Registry Development Manager

Circa £34,500 - £35,000 doe plus benefits and flexible working

Full time permanent post in Aldgate, London, EC3N 1RE


The Cystic Fibrosis Trust is fighting for a life unlimited for everyone affected by the condition. Our mission is to create a world where everyone living with cystic fibrosis will be able to look forward to a long, healthy life.

The Cystic Fibrosis Trust has a fundamental story to tell, a story of a devastating genetic condition and the fight to lift the limits people with cystic fibrosis (CF) currently face. It’s the story of a mission to create a new future where everyone with cystic fibrosis can live a life unlimited by their condition.

The charity is at an exciting time as we prepare to take our fight further and wider than ever before. We’re campaigning to put cystic fibrosis on the government agenda and to raise awareness of CF around the country on a local and national level.

The post holder will contribute to the Cystic Fibrosis Trust’s world-leading quality improvement and research project. You will be part of a dynamic team committed to maximising the use of Registry data for the benefit of the cystic fibrosis community.

This exciting post will oversee the technical development of the UK Cystic Fibrosis Registry software, ensuring that changes to the system are targeted at improving the quality of Registry data and resulting reports, and that they are delivered on time and within budget

A team player and able communicator, you will be experienced in data collection and reporting systems development. You will have an in depth understanding of data collection and reporting methodologies and data quality requirements and limitations. You will have excellent attention to detail and ability to work across diverse teams and functions to deliver strategic and operational priorities. You will be passionate about supporting the Cystic Fibrosis Trust in its aim of beating cystic fibrosis for good.

If you feel you can contribute to helping us create a life unlimited for people with cystic fibrosis, take a look at the full role description. Then complete the application form and equal opportunities form, and send your CV and a covering letter detailing your relevant experience to recruitment@cysticfibrosis.org.uk. The equal opportunities form will be separated from your application form prior to the selection process. The information you provide will be treated as sensitive data under the Data Protection Act 1998.

Closing date for completed applications is 9:00am 11 December, with interviews being held on the week commencing 18 December.

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch