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Cystic Fibrosis Trust

Join our fight for a life unlimited...

As a campaign partner, you can do as much or as little as you like! Whether it's sending a letter demanding action on a particular issue or meeting your MP and developing an ongoing relationship with them, we'd love to have you on board and we'll support you every step of the way.

On Monday 26 June we will be holding a day of protests across the UK and calling on Vertex and the governments of England, Scotland, Wales and Northern Ireland to speed up their negotiations and reach an agreement on Orkambi. Thousands of people living with cystic fibrosis (CF) have simply been waiting too long for this vital drug, and we think this is unacceptable.

Join our Orkambi protests on 26 June


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We provide a voice for people affected by cystic fibrosis through our work with clinicians, NHS commissioners and politicians at all of UK parliaments and assemblies to drive up standards of care and raise awareness of cystic fibrosis issues.

Big Ben doodle for the Cystic Fibrosis TrustVirtual Campaign Workshops, TBC
Keep an eye out for our next virtual, interactive campaigning workshop for the CF community. Delivered by Parliament Outreach and the Trust, the workshops provide an introduction to Parliament and engaging with the political process, linking to the Trust's campaign work. Contact the Public Affairs Team if you want more information.

Stopping the Clock: campaign for access to precision medicines
We are demanding fair access to life-changing precision medicines for everyone with cystic fibrosis by 2020. Keep an eye on the campaign page for updates, including petitions and other ways of getting involved.

Raise an issue with your local MP

From access to medicines, to Personal Independence Payments (PIP), your MP is your gateway to the decision-makers in Government. With a relatively small number of people with cystic fibrosis in the population, it can be hard to get the attention the condition deserves. However, this all changes when your MP is contacted by you - one of the constituents they are elected to represent - to share your own story.

There are many ways to contact your MP, including via the Trust as a campaign partner (see above), or via an e-action. Find out who your MP is - if you need any further support in contacting them, our Public Affairs team will be happy to help!

Top tips

  • Start with an email or letter to your MP.
  • Keep it simple and to-the-point: what is the issue you wish to raise?
  • Include your name and address, so they know you live in their constituency.
  • A personal story is best! Explain why the issue is relevant to you.
  • Follow up with a face-to-face meeting if you think it will help - this can be done at a local 'MP surgery'.
  • Link with the Trust's campaigns via our Public Affairs team - we'd love to offer you guidance, information and support.

Care and treatment

Discover the different medications and methods used to treat cystic fibrosis, as well as the many ways you can take care of yourself.

Read on

FAQs

Public awareness of cystic fibrosis is low; here's your chance to find out the answers to the most commonly asked questions and discover further resources.

Find the answers

Life Unlimited

Find out about our mission to create a brighter future where everyone with cystic fibrosis can live long and healthy lives, unlimited by the condition.

Discover our core belief