Campaigning to end travel discrimination for people with cystic fibrosis (CF) and their families.
In 2015, we launched a travel insurance campaign in response to concerns around travel insurance and oxygen on flights.
The survey revealed the shocking extent of premiums and restrictions that are often imposed by the travel insurance industry on those affected by cystic fibrosis.
Whilst improvements have been made, the Trust has launched a new survey to better understand the impact new modulator therapies and the COVID-19 pandemic has had on insurance products for people with CF.
If you have travelled in the past 12 months and taken out a travel insurance policy, we would invite you to complete our survey.
Making travel fair
As a result of our findings back in 2015, the Trust has continued to campaign hard to make access to insurance fairer for people with CF.
What we have achieved so far
Since our travel campaign launched in 2015, we have continued to meet with a number of specialist travel insurance companies to discuss CF treatments and care, and help insurance companies better understand the condition and manage the risks of providing cover for those with CF.
We have continued to help highlight and inform companies of developments in CF that might otherwise affect premiums. This includes updating them on changes in medications, such as access to new modulator therapies, educating companies on complications like CF-related diabetes (CFRD), explaining the difference between planned and emergency intravenous antibiotics, and most recently, highlighting the impact of the COVID-19 pandemic on the CF community.
This information has been key in helping to create improved and affordable access to travel insurance for people with CF and their families.
As a direct result of our meetings with specialist insurance providers, there has been a notable cost reduction for those seeking cover for their condition, and the user experience when taking out a policy has been improved and simplified.
The Trust’s Helpline provides a list of up-to-date travel insurance companies that may offer CF cover.
This list can only be accessed on request via the Helpline and includes companies we have worked with previously, and recommendations from the CF community where they have had a positive experience.
The Trust does not recommend any specific travel insurance company.
How can I get involved?
If you have taken out an insurance policy in the past year, we would be delighted if you could complete our survey.
If you would like to get involved with the campaign or share your experience, please contact email@example.com.
Please check back for further updates on our Travel campaign.
Research we fund
We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.
What is CF?
Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.
Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our Press Team.