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Cystic Fibrosis Trust

Travel Fair

Campaigning to end travel discrimination for people with cystic fibrosis and their families.

Travel insurance – listening to our community

In May 2015 the Cystic Fibrosis Trust launched a travel insurance survey in response to concerns raised by the CF community via our helpline over issues ranging from travel insurance to oxygen on flights.

The results, published in CF Week in June, revealed the shocking extent of premiums and restrictions that are often imposed by the travel insurance industry on those affected by cystic fibrosis. These findings included:

  • No cover – 1 in 6 said they were forced to travel without insurance.
  • Simply unfair – 7 out of 10 people with cystic fibrosis say they are treated unfairly by insurance companies.
  • Hiked up costs  – Nearly 1 in 4 people with CF pay £250 or more for travel insurance and nearly 1 in 10 pay over £500.
  • It takes time – 1 in 4 said it took at least 4 hours to find appropriate insurance cover.
  • What would improve things for people with cystic fibrosis? 9 out 10 respondents want travel insurance to be more affordable and 8 out of 10 want more comprehensive insurance cover.

See the survey results (PDF 78KB).

Making travel fair

As a result of these findings we are campaigning to make travel fair and end the discrimination for those with cystic fibrosis and their families.

We are calling for:

  • The travel insurance industry to provide cost effective travel insurance based on an individual’s health rather than their condition.
  • Charter airlines to provide oxygen on board for those with cystic fibrosis (and others needing to use it) free of charge.

Campaign updates

  • In CF week 2015 we published the survey findings.
  • In the coming weeks we are meeting with two travel insurance companies to discuss development of new insurance products.  

Please check back for further updates on our travel fair campaign.

For further travel advice and information including details of our travel grants please contact the Trust’s helpline.


The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

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What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

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