Advance care planning for people with cystic fibrosis
Advance care planning allows us to hope for the best, but plan for the worst. It is a process of discussion between a person with cystic fibrosis and their CF team, and can include family and friends if that is the individual's wish. These discussions allow the person with CF to express concerns, make requests about future care, and record their preferences and wishes for their family and CF team to refer to when they become more unwell and reach the end of their life.
- Advance care planning for people with CF - this form is for use by a person with CF, to fill in either alone, with family or their clinician as preferred. It can be completed all at once or in stages, and a member of the CF team involved will be happy to discuss it at any point.
- Advance care planning guidance - these guidelines are designed to support clinicians to help people with CF as they fill in this form and have some of the conversations that this type of planning can involve. It may also be useful to anybody working with the advance care plan form (above).
Take a look at our physiotherapy leaflets, where we have information on PARI PEP™ and Acapella™®.
We will be adding to this page over time, so please check back.
Other resources for CF clinicians
Keep checking this page as we'll be adding new resources as they are developed.