What is it?
The Clinical Trials Accelerator Platform is a UK-wide initiative to bring together cystic fibrosis (CF) centres, to increase participation and improve access to CF clinical trials. We are building a network of CF centres that will collectively lead in the delivery of high-impact clinical trials. Each participating centre will be awarded funding for a Trial Coordinator or Research Nurse to provide much-needed extra capacity to support the delivery of CF clinical trials.
We know that boosting capacity for clinical trials in the UK is essential to prove the safety and effectiveness of new treatments, and to make them available as quickly as possible. From speaking to clinical professionals across the UK, we also understand how time-consuming facilitating trials is, in a system that is already over-stretched. That is why the Trials Accelerator aims to support centres by adding capacity as well as providing a national coordinating role within the Trust.
"Funding a clinical trials coordinator as part of the Trials Accelerator to inform and streamline patients' access to new CF therapies has been one of the most innovative and practical initiatives I have been involved with. The research process for adult and paediatric CF studies at Southampton General has greatly improved. We are enormously grateful to the Trust for evolving this creative concept which patients need at this exciting time of new drugs and therapies." Dr Mary Carroll, pictured with Dr Gary Connett and their Trial Coordinator, Shobonna Akter and other members of the Southampton Clinical Research Facility, Biomedical Research team and R&D.
Over to you...
The success of the Clinical Trials Accelerator Platform will only be possible with your support. By getting involved in all aspects of clinical trials, you can help ensure everyone with CF can get faster access to better treatments.
To find out more about clinical trials, visit our Clinical Trials Digital Hub. Here you will find an array of information about taking part in clinical trials, as well as our very own CF Trials Tracker; a CF clinical trials database to help you find suitable clinical trial opportunities.
Are you interested in sharing your unique perspectives of life with CF to ensure that what really matters to people living with the condition is incorporated into research? Join our Focus Group as part of our Clinical Trials Accelerator Platform.
Register your details with us today and you may be called upon without obligation, to:
- Complete questionnaires, surveys or comment forms relating to clinical trials or research as they arise
- Join digital forums, webinars or live social media feeds, providing engagement with researchers or pharmaceutical companies
- Join Q&A sessions on proposed studies
We want the voices of the entire CF community to be represented, from youngest to oldest, which is why we are excited to be offering this opportunity to get involved to people and children with CF and their families.
Contact firstname.lastname@example.org for a registration form.