UK Cystic Fibrosis Registry

The UK Cystic Fibrosis Registry is a secure centralised database, sponsored and managed by Cystic Fibrosis Trust. It records health data on consenting people with cystic fibrosis (CF) in England, Wales, Scotland and Northern Ireland.

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Registry reports

Take a look at the annual registry reports, including the 'at a glance' summaries, giving a quick overview of how measurable aspects of cystic fibrosis have changed since the previous year. 

Make a donation

Every penny donated helps create a brighter future for people with cystic fibrosis, by funding support, research or other vital work.

Care and treatment

Discover the different medications and methods used to treat cystic fibrosis, as well as the many ways you can take care of yourself.

Contact us

Get in touch with us to speak to someone on our Helpline, find out about an event or speak to our press team.

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