Become a CF Trial Ambassador

Our CF Trial Ambassador's Forum is made up of representatives from the whole cystic fibrosis (CF) community. Individuals of a variety of ages, backgrounds and experiences share their views and opinions by answering surveys and questionnaires, or by joining online focus group discussions, allowing them to interact with research teams and other people with cystic fibrosis. 

As a CF Trial Ambassador you will be able to share your experiences of living with CF, or of participating in trials, with researchers. Researchers will also be able to share information about the work they are doing with you, allowing for an equal exchange of knowledge.

CF Ambassadors will be able to:

  • Provide a wide and diverse representation of our CF Community
  • Provide their views, opinions and feedback on tools and resources of the Cystic Fibrosis Trust, including literature, webpages and the Cystic Fibrosis Trials Tracker
  • Complete surveys, questionnaires and comment forms from the Trust, clinical teams or researchers/industry helping to ensure a high response rate and robust results
  • Join webinars, digital forums and social media feeds to comment on proposed new CF treatments or procedures
  • Provide feedback to pharma/industry or academics on clinical trial design in the conceptual stage, ensuring that the needs and requirements of the CF Community are being taken into consideration
  • Join Question & Answer sessions

This is without obligation. There is no need to commit to a standard number of hours for this role as opportunities will arise on an ad-hoc basis.

If you feel you’d like to learn more about how and why clinical trials are conducted, we’d recommend the free FutureLearn video-based course

Become a CF Trial Ambassador

Name
Address
Telephone
Email
Connection to CF
Age range you represent
Please confirm the age range you represent of a person with CF. Some questionnaires or surveys may only be relevant to paediatrics or adults.
Past Experience of Trial Participation
This is optional. If you have any past experience of trial participation, can you give brief details. For example, what was the trial for, what did you do, how long did it last, and do you know the outcome?
Clincial Trials Newsletter

In completing this form, you consent that the Cystic Fibrosis Trust will store and process the information provided above in accordance with our privacy policy unless you have told us otherwise. Read our privacy policy.

We’d love to keep you updated about our work and how you can help, including petitions or fundraising activities. In order to send you emails about our work or to contact you by text message, we need your permission. Please let us know how you’d like to be contacted and say yes to getting involved in the fight for a life unlimited by cystic fibrosis. You can also call 020 3795 2177 or email supportercare@cysticfibrosis.org.uk

We will not share your details with anyone else, unless otherwise stated and in accordance with our privacy policy.

Research we fund

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What is CF?

Cystic fibrosis, or CF, affects the lungs, digestive system and other organs, and there are over 10,600 people living with it in the UK.

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