Become a CF Trial Ambassador

Our CF Trial Ambassador's Forum is made up of representatives from the whole cystic fibrosis (CF) community. Individuals of a variety of ages, backgrounds and experiences share their views and opinions by answering surveys and questionnaires, or by joining online focus group discussions, allowing them to interact with research teams and other people with cystic fibrosis. 

As a CF Trial Ambassador you will be able to share your experiences of living with CF, or of participating in trials, with researchers. Researchers will also be able to share information about the work they are doing with you, allowing for an equal exchange of knowledge.

CF Ambassadors will be able to:

• Provide a wide and diverse representation of our CF Community
• Provide their views, opinions and feedback on tools and resources of the Cystic Fibrosis Trust, including literature, webpages and the Cystic Fibrosis Trials Tracker
• Complete surveys, questionnaires and comment forms from the Trust, clinical teams or researchers/industry helping to ensure a high response rate and robust results
• Join webinars, digital forums and social media feeds to comment on proposed new CF treatments or procedures
• Provide feedback to pharma/industry or academics on clinical trial design in the conceptual stage, ensuring that the needs and requirements of the CF Community are being taken into consideration
• Join Question & Answer sessions

This is without obligation. There is no need to commit to a standard number of hours for this role as opportunities will arise on an ad-hoc basis.

If you feel you’d like to learn more about how and why clinical trials are conducted, we’d recommend the free FutureLearn video-based course.