How we can support you

Through our Helpline, we offer practical support and information for people living with CF and their families. Take a look at the opening hours, the issues we can support you with, or the different ways to get in touch.

Our Helpline

Financial support we provide includes:

• Grants for people with cystic fibrosis to help with some of the costs associated with the condition, including emergency, transplant, health and wellbeing, holiday, home care, education and prescription pre-payment certificate grants.
• Support with applying for benefits, such as DLA, PIP or Universal Credit.
• Information on prescription charges and grants to cover the cost of a pre-payment certificate.
• Income Maximisation Service, supporting you to access our benefits advice and helping you make the most out of your money.
• Helen Barrett Bright Ideas Awards to help people with cystic fibrosis turn their hobbies into new businesses.

Are you planning to study at university or college? Are you already a student, and need some help with budgeting, or you're thinking about applying for a Disabled Students' Allowance (DSA)? Find out how you can access individual, personalised support through our Student Support Service, to talk through your further or higher education student needs.

Need some support to tell your employer about your CF? Want to talk through your career options? Have you got questions about how to balance work and CF? Through our Work Forwards programme we can provide support on all aspects of work and employment to anyone affected by CF. You can contact the Work Forwards team by emailing [email protected].

Find out more

We know cystic fibrosis can sometimes be an isolating condition. You can share your experiences and concerns with other members of the CF community by joining our social network on Twitter, Facebook and our Forum.

For parents and families of children with CF we can put you in touch with a trained parent volunteer who can share their experience of life with a child who has cystic fibrosis through our CF Connect scheme.

Cystic fibrosis should not be a barrier that stops you from living the life you want - including going on holidays. Make use of our information on travel and cystic fibrosis.

We have a huge range of information packs and factsheets on a number of issues relating to cystic fibrosis. Our information packs cover a number of subjects in depth and can be downloaded or ordered as hard copies. Our factsheets cover a number of issues related to cystic fibrosis, including diagnosis, related complications like bone health and diabetes, CF treatments, nutrition, physiotherapy, the issues associated with living with CF, and preparing for transition.

If you're a CF professional looking to promote our support services to those affected by CF, we've created a leaflet to show what we have on offer. Download and print the leaflet or order print copies by contacting our Helpline.

Download now