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Cystic Fibrosis Trust

Support for everyone affected by cystic fibrosis

Find out about our high-quality, trusted information and support to help everyone with cystic fibrosis (CF) live life to the full.

Whatever you’re going through, we have a range of information and services to help lighten the load.

Day-to-day support with cystic fibrosis

The effects of CF on an individual, their family and wider support network, are challenging and persistent. 

The Cystic Fibrosis Trust helpline and network

Through our helpline we offer practical support and information for people living with CF and their families. The helpline is open Monday-Friday 9am-5pm, and can help with a range of issues, from housing and employment to travel and holidays, or just lend an ear when you need someone to talk to who understands the ups and downs of life with cystic fibrosis.

Through our specialist benefits advice we can support you to access the benefits you could be entitled to, helping to lift some of the financial burden of living with cystic fibrosis. Our helpline team can put you in touch with our expert Welfare and Rights Advisor who can help and advise you at any stage of your benefits claim, and we can provide comprehensive information on Disability Living Allowance (DLA) and Personal Independence Payment (PIP)

The helpline can be contacted on helpline@cysticfibrosis.org.uk or 0300 373 1000.

Connecting with others

We know cystic fibrosis can sometimes be an isolating condition. You can share your experiences and concerns with other members of the CF community by joining our social network on Twitter, Facebook and our Forum.

For parents and families of children with CF we can put you in touch with a trained parent volunteer who can share their experience of life with a child who has cystic fibrosis through our CF Connect scheme.

Cystic Fibrosis Trust grants and financial support

We can provide grants for people with CF to help with some of the costs associated with the condition, such as emergency grants in times of financial difficulty or for transplant assessments or funerals, or health and wellbeing grants for anything that can improve the health and quality of life of someone with cystic fibrosis, including exercise equipment, gym fees and household essentials. We also provide holiday grants for over 18s who have CF, and links to other sources of financial support.

The Helen Barrett Bright Ideas Awards help people with CF turn their hobbies into new businesses, providing an opportunity to turn your ambitions into reality.

Parents of a child with a new diagnosis of cystic fibrosis

We understand how difficult the diagnosis of cystic fibrosis can be and have put together some an information pack for new parents to help you find out more. We have created this resource with the help of a number of parents, so it covers a range of experiences. 

Travel information

Cystic fibrosis should not be a barrier that stops you from living the life you want - including going on holidays. Make use of our information on travel, and our free translation service for medication letters when you go on holiday, to explain your medication requirements in any of our supported languages, including French, Spanish, Italian, Portuguese and Turkish.

Download our medication form if you would like to use this service.

You may also be interested in our travel insurance information, including companies that cover people with pre-existing conditions, and some helpful pointers to consider.

Bereavement

We've also created a series of informative leaflets about bereavement to help you get the support you need if you are coping with the loss of a loved one.

If you need anything else, get in touch with our helpline by email or call us on 0300 373 1000, or explore our website for more information. 

Research

The Trust is committed to funding and supporting cutting-edge research to find new and better treatments for cystic fibrosis. Take a look at some of that work and the progress that is being made.

Discover more

What is cystic fibrosis?

Find out more about cystic fibrosis, its diagnosis and how it is treated, as well as useful links to our publications and other organisations who can help.

Read on

More information

If you would like to find out more about any of our campaigns, publications or anything else, get in touch and we'll be happy to help.

Get in touch