Connect with others
Sometimes the best support comes from others who are in the same boat. That's why we're here to help you connect with other people with cystic fibrosis (CF) or parents of children with CF.
CF Connect
CF Connect is our peer support service for parents of children with CF, putting you in touch with a trained parent volunteer who you can talk to in confidence.
Online community forum
Our community forum is a great place to meet others affected by CF. It’s a safe space to seek information, access support, and chat with others who know what you’re going through.
Involvement group
By signing up to join the involvement group, you can share your insights and make sure that the lived experiences of people with CF are at the core of everything we do.
Share your story
Sharing your story, and reading the stories of others, can be a great reminder that there are others who understand what you're going through.
CF youth
We have loads of events, support and opportunities for young people with CF and their siblings and friends.
Work Forwards
Our Work Forwards programme offers free tailored careers information, advice, and guidance for people with CF and their loved ones. As well as resources and one-to-one support, we regularly hold events where you can hear from others with CF about their worklives.
Connect with us on socials
Follow our socials to connect with the community, stay updated on news and events, and share your own experiences.
- Facebook: Cystic Fibrosis Trust
- Instagram: @cftrustuk
- LinkedIn: Cystic Fibrosis Trust
- YouTube: Cystic Fibrosis Trust
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Here to help
If you’re struggling with any aspect of cystic fibrosis, we’re here to help. Contact our Helpline for support, a listening ear or just someone to talk to.
Financial support
We support people with cystic fibrosis and their families every step of the way, from welfare grants, support applying for benefits and information and advice for times in financial need.
Work and education support
If you have CF and are looking for, or want to stay in, work or education, we can support you.