CF Connect peer support

CF connect

CF Connect

CF Connect is our peer support service for parents of children with CF.

CF Connect puts you in touch with a trained parent volunteer who you can talk to in confidence about having a child with cystic fibrosis.

We understand that cystic fibrosis can be an isolating condition for families.

The risk of cross-infection means parents of children with CF cannot meet up as easily as they might like, and often miss out on the chance to talk to someone who knows how they feel. That’s why we set up CF Connect: a service where you can speak to a trained volunteer who also has a child with cystic fibrosis.

  • What is CF Connect?

    CF Connect is a peer support service where you can speak to a trained volunteer who also has a child with cystic fibrosis.

    Whether your child has been recently diagnosed with CF, or whether you’ve got worries or questions further down the line, CF Connect can put you in touch with someone who understands.

  • Who are CF Connect volunteers?

    CF Connect volunteers are all parents of children with CF, so as well as offering a listening ear, advice and support, and the chance to share experiences, they also understand the challenges you may be facing. 

    We have volunteers across the country, who have children of different ages and are there to help.

  • Who can use CF Connect?

    You don’t have to be a parent to use the service – you could be a grandparent, uncle, aunt, or even a friend of the family.

  • How do I sign up for CF Connect?

    To chat with another parent through CF Connect, please fill out our request form and email this to [email protected].

    If you need help filling in the request form, please contact our Helpline on 0300 373 1000 or at [email protected] and one of the team can go through this with you over the phone.


  • Resources to promote CF Connect

    If you're a CF professional looking to promote CF Connect to parents and carers of children with CF, you can download and print the leaflet or order print copies by contacting our Helpline.

    Download the leaflet

I just needed to talk to someone who understood what I was feeling because they’d been there.

Kirsty, mum to 10-year-old George, who has CF


Our friendly Helpline team are here if you need us - whether you're looking for information, support, or just someone to talk to.

Financial support

Find out more about the financial support we offer.


Take a look at our information resources, which cover a whole range of issues that can affect people living with cystic fibrosis (CF).

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