Cystic fibrosis can bring its own financial burden, so we provide a range of grants for people with cystic fibrosis and their families that struggle to meet these costs.
There are three types of grants we provide: emergency grants and health and wellbeing grants and holiday grants.
1) Emergency grants
There is a simple process for applying for emergency grants, and payments will normally be made within a week of us receiving the application.
Emergency grants include:
Transplant grants (Maximum amount £250)
These cover travel and related costs for people having a transplant or transplant assessment.
Small grants (Maximum amount £150)
These could be used for emergency needs such as essential smaller cost items, emergency household repairs or unexpected travel costs.
This is a grant of £750 to pay towards the cost of a funeral.
2) Health and wellbeing grants
These are grants to purchase goods or services to support your health and wellbeing. Typical grants will be for around £250 to £350. People can only apply for health and wellbeing grants once per year. Please note, we are currently unable to provide grants for nebulisers.
Find out more about these grants and apply.
3) Holiday grants
The Cystic Fibrosis Trust provides grants towards the cost of holidays, trips and short breaks for people aged 18 and over who have cystic fibrosis. Holiday grants are usually for £200-300 and can be used to fund costs associated with taking a holiday, including the cost of travel insurance or oxygen on holiday/while travelling.
Our helpline can provide information on companies that may offer reasonably priced travel insurance, and advice on how to minimise the cost of oxygen. We advise you to organise travel insurance and oxygen as far in advance as possible.
We have limited funds available for holiday grants, and we have to prioritise those most in need of a holiday. Please provide as much information as possible when applying for a grant. Please note, you can only apply for a holiday grant once every two years. Applications are assessed by our independent panel every two months.
If you or the person you are applying for has CF and is over 18, please complete our application form to apply for a holiday grant. If you have any questions or need any help to complete the form, please contact our helpline on 0300 373 1000 or email firstname.lastname@example.org.
The Cystic Fibrosis Holiday Fund (CFHF) funds and provides grants towards holidays for those who have cystic fibrosis and are aged under 18. Please contact them directly for information and to find out how to apply by visiting their website or writing to:
Cystic Fibrosis Holiday Fund
1 Bell Street
or calling 020 7616 1300.
Applications are assessed quarterly.
Other organisations also offer grants for people with cystic fibrosis:
The Joseph Levy Education Fund helps young adults with CF over the age of 18 with the costs of higher education, or other professional qualifications.
The deadline for applications to this fund is 30 March each year. To apply, complete an application form or contact Roland Gyallay-Pap by email or on 020 7616 1207.
For further details, please see the Welfare Grant Guidelines.
In addition to grants, financial support is also available as the following: