CF Youth programme
Are you 6-25 years old? Do you have CF? Or do you have brothers, sisters, a mum or dad with CF? Then you're in the right place! You can hear all about our work for young people on Instagram @cftrustyouth.
Free online events
Join our fun online events
At Building Brighter Futures we run free online events and workshops for 6–14 year-olds with cystic fibrosis.
Children have an amazing time making friends, having fun and learning new skills. We have games nights, coding workshops, arts and crafts courses and lots more!
Keep up to date with what’s on at @Cftrustyouth on Instagram or get in touch with us at [email protected].
Youth Advisory Group (YAG)
Make a difference to the lives of young people with CF
YAG is a group of young people aged 14-25 who have CF, or who have a close family connection to someone who has CF.
Find out more about YAG and see how you can influence work at the Trust and make sure that the voices of young people with CF are heard.
Resources and information
Get the information you need
Being a young person with CF isn't one size fits all.
That's why we've put together lots of useful information and resources for children and young people with CF and their friends and family.
Meet the youth team
If you come to one of our events you will almost definitely meet Bahar…
"I'm Bahar and I love video games, swimming, dancing, meeting new people, reading, and learning new things! I have two cats called Saffy and Sooty, who are adventurous, and constantly hungry.
"My favourite food is chocolate but I recently discovered the joys of eating instant noodles RAW… (send help)!
"My favourite thing about my job is getting lovely feedback from young people and their parents about the positive difference our workshops and social activities have made for them!"
You might also meet Ellie, who manages the youth programme…
"I'm Ellie! Birds are my favourite animal. I feed the crows in the park and now every time I go there they follow me!
"If I had a superpower I would want to be able to fly. Maybe then I can chase the crows instead of them chasing me.
"My favourite thing about my job is meeting lots of awesome, hilarious and friendly children and young people, and having fun with them at our events!"
You’ll meet Ryan at our games nights…
"I'm Ryan and I have CF. I have a passion for gaming and creating content for Twitch and YouTube. My favourite video game genre is first person shooters but I do love a good adventure game like Sea of Thieves.
"I am also a big Star Wars fan. I’ve watched all of the movies, TV show series, read most of the books/comic books and collect the memorabilia. If I'm not too busy with my hobbies I like to keep fit by going for a run, using my exercise bike or playing football.
"My favourite thing to eat is Chinese food but my ultimate comfort food is a good old Pot Noodle."
Or you might have fun with Jess at a Zoom pop party or drama club!
"I'm Jess and I have CF. My idea of a perfect day is going for a hike or a sea swim, and then coming home to watch realit
y TV and order a takeaway!
My favourite animal is a tortoise. I'm quite a slow person (slow runner, slow eater, slow thinker) so I feel that I can relate to tortoises.
I absolutely love facilitating workshops for the Trust: my favourite thing is feeling part of the CF community and meeting all the inspiring, resilient young people who have CF or a connection to CF."