CF Youth programme

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CF Youth programme

Are you a young person with cystic fibrosis (CF)? Join our Youth Advisory Group, sign up to a free workshop or event, or take a look at some of our information and resources!

Online events

Are you aged 6–18 with CF, or close to someone who is? We run fun and exciting online events for young people every week, to make friends, have fun and learn new skills (all from the comfort of your own home!).

From games nights, to free online workshops, to movie nights, we have something for everyone! Sign up to an event listed below by emailing

Upcoming dates

  • 5 March, 6pm – Movie night (8–14)
  • 10 March, 5–7pm – Juggling workshop (6–12)
  • 16 March – Arts and crafts
    • 5–6.30pm: 6–9 year olds
    • 6.45–8.15pm: 10–14 year olds
  • 27 March – "Get moving with Nicole" (yoga and dance)
    • 10–10.45am: 6–9 year olds
    • 11am–12pm: 10–14 year olds


Sign up to an event

Keep up to date with what’s on at @CFTrustYouth on Twitter or get in touch with us at

It was really fun and inspiring and I really enjoyed it... thank you so much to everyone involved!

Young person with CF

My son loved it and will definitely go again! It was 'The funnest thing he's ever done', he said!

Mum to a young boy with CF
Collage of creations for the CF Trust's Youth Advisory Group (YAG)'s #MorethanCF project

Youth Advisory Group (YAG)

YAG is a group of young people aged 14-25 who have CF or close to someone living with the condition. As a member of YAG, you could:

  • Influence work at the Trust
  • Make sure the voices of young people with CF are heard
  • Lead your own projects
  • Meet amazing people
  • Make a change!

Find out more about YAG and see how you can influence work at the Trust and ensure that the voices of young people with CF are heard.

BBC Children in Need logo

Building Brighter Futures

Building Brighter Futures is a programme for 10-18 year olds with cystic fibrosis, funded by BBC Children in Need. Find out more about Building Brighter Futures and the upcoming workshops, talks and events that you can get involved in.

"I loved this workshop and I can't wait for the next one... it is the best workshop I have been to." - Young person with CF

"I really enjoyed the workshop and I don't usually like writing! I've made new friends and it gave me something to look forward to during lockdown. Thank you." - Young person with CF

Youth Instagram

Our youth Instagram account is created for, by and with young people with cystic fibrosis. It is a supportive space where young people can share their creations, thoughts and voices.

If you have something you’d like to share with the community then get in touch with us @cftrustyouth or

Information and support

We've got loads of useful packs to help you through important life stages and events, whether you’re in secondary school, higher education or going to a festival.

Find out more on our information and support for young people page.

Latest news

Launch of the leaving school pack

Whether you’re moving on to training, sixth-form, college, university, of taking a gap year, our resources are here to help you make the decisions that are right for you! 

Take a look at our leaving school resources, which we created with parents and young people with cystic fibrosis. You'll find a pack for young people, a pack for parents, a booklet for training providers, colleges and universities, and even a short animation to help you decide what you want to do after you've left school!

Explore the packs

Clinical trials for young people

Ever wanted to know how new drugs for CF are developed? Jade, a member of our Youth Advisory Group, helped to design our clinical trials video for young people with CF, and even narrates the video herself! 

Youth Advisory Group

Our Youth Advisory Group (YAG) is a way for young people with CF aged 14-25 to influence the work of the Trust and have their voices heard.

Building Brighter Futures

Find out more about our programme of talks, Q&As and workshops for 10-18 year olds with cystic fibrosis.

Information and support

We've got loads of information and support made by and for young people with cystic fibrosis.

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